I got told by a urologist on Wednesday that I have bladder cancer
Naturally I am in total shock.
I spotted it because I would pee blood but only after running. I know that if i went running again i would almost certainly pee blood again.
So my question is it safe to run?
Also I had a full scan on Friday to see whether it had spread and they were saying that i would have an operation in three weeks.
What are other people's experience of that timeline? And what sort of appointments happen afterwards?
Hi and welcome to the community, although sorry you had to find yourself here. We know how anxious the early days of uncertainty can be and you will think of a lot of questions. Hopefully we will be able to help. I assume you have had a cystoscopy (camera) to be old you have bc. It is wise to keep fit in order to tackle any forthcoming treatment, but anything strenuous could aggravate any tumours and cause them to bleed. You would need to speak to your doctors for advice on this. CT scans are routine to get a better picture and to rule anything else out. The operation you will have is usually a TURBT (trans urethral resection on bladder tumour). In most case done in day surgery or possibly an overnight stay. You would not be able to run for at least 2 weeks after this as the wound heals. 3 weeks for the op is quite good. People usually wait longer. A biopsy will be taken to confirm if cancer or not. You then have a further 2 or 3 weeks wait for results. You should get a follow up appointment to discuss things and any further treatment. Any questions, please feel free to ask. many of us have been there. Best wishes.
Hi Niall73, As Rily says welcome although sorry you have reason to be here. I'd echo everything he says. As regards exercise, I guess you will miss your running. So might be worth trying swimming instead. My husband has been able to swim some of the weeks he has had BCG/chemo depending on fatigue levels. If you can get to a pool that has lane swim sessions with a slow lane that's not too busy, you can chug up and down without straining your body as much as running or too much stress from constantly looking out for people in front of you. And we find we always sleep soundly after swimming, which is a plus if worry or discomfort keep you awake.
What sort of appointments happen afterwards will depend on what the lab results are on the samples they will take when you have the op. If it is the type that has not gone into the muscle wall likely you'll be offered BCG immunotherapy or chemo. Either of these is a weekly outpatient visit when a nurse will put the treatment into your bladder through a catheter which is then removed immediately.
Keep on asking your questions and when you've time I would suggest browsing some of the other discussions on here for tips. Maybe not too much at once so you don't get overwhelmed, maybe with a notebook to jot down stuff you want to ask your doctors when you see them.
Best wishes,
Denby
Hi I've just joined the cite. I've had bladder cancer for two years . I've had a full course of BCG Which I tolerated well. I 've since had a few camera exploration which were fine. But just before Christmas I had a very bad pain in my back which after a scan discovered my kidney was distended.it turn out I had tumers in the urethra..They have been removed and I now have a stent in the tube from bladder to kidney. I hate it!!! There is blood in my urine all the time. I've spoken to my consultant about it but he just advised drinking penty of water. I'm not sure the stent will become a permanent thing or will be removed at my next op which is in August. Has anyone else had the same experience.? I feel fine apart from the bleeding.
Hi and welcome to the community, although sorry to hear of your discomfort with the stent. I've no experience of this so unable to help. Hopefully someone who has had these may come along to share. I see you have posted in the ask a Nurse section, so you should get expert advice there when the nurses pick up your post. Best wishes.
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