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FormerMember
FormerMember
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Hi all,

I've recently been diagnosed with bladder cancer. I'm unaware as to what stage it's at yet as I only had TURBT on Tuesday 8th. It was very worrying, as I never had a cystoscopy, just an ultrasound which discovered a tumour on my left lateral wall. 

However, when I had the TURBT, it was discovered that I had 6 papillary tumours, spread around my entire bladder.

At the moment, I'm very nervous at to what the future will hold, as I most certainly am not the usual age profile of your average bladder cancer sufferer, for want of a better word - I've just turned 44.

I know what the consequences of bladder cancer are once it's become invasive (my father also had bladder cancer, but he was diagnosed in his 70's), and I'm struggling to come to terms with what will happen should I have to have my bladder removed, and the subsequent loss of sexual function.  

If there are others on here that have had bladder cancer at such a relatively young age, I'd love to hear from you and how you dealt with it.

Thanks in advance,

Nickfreckle. 

  • Hi Nickfreckle

    As I said in another post to Dansnan1, there is no need to suffer so please do contact your CNS or urologist. Infections are common and it's important to get anything that feels unusual properly investigated. That brings peace of mind.

    I had to go to A&E 24 hours after my TURBT and be catheterised as a blood clot had blocked my uretha. The pain was grim and I felt like you, I didn't want to make a fuss. I've changed my attitude now, pain is nature's way of telling us there is something awry.

    CB

    I may appear to be listening but in my head I'm all at sea. 

  • FormerMember
    FormerMember in reply to Crustybladder

    I was due my CT this morning but have had to postpone as I cannot hydrate enough for the contrast - every 10-15 minutes I'm having to use the loo - a very nice and understanding lady on the other end of the phone I may add. 

    Actually going isn't a problem - I'm going alright, it's just flipping painful! Grimacing

    I have started to pass little bits of the scabs (nice), but the burning pain at the end of my old chap when I do go is getting ridiculous - so have a GP appointment this afternoon. Hopefully a course of anti-biotics, and within a couple of days once they start kicking in, I won't be sounding like a dog that's had it's tail trodden on when I pass water. 

  • Oh, the memories. I'm howling too, but with laughter! Keeping a sense of humour and finding the ridiculous side of all this is recommended. As I've said before, if I'd had a bladder, I'd have wet myself laughing!

    CB 

    I may appear to be listening but in my head I'm all at sea. 

  • FormerMember
    FormerMember in reply to Crustybladder

    Got to keep my spirits up mate, otherwise I'd end up a dribbling, rocking mess.

    Though at the moment, I am a dribbling mess, but not in that way!

  • FormerMember
    FormerMember in reply to FormerMember

    And bliss may well be just around the corner. Little infection, antibiotics prescribed, and the road to pleasant piddling is now open! Shame the toll was just over 8 quid, but needs must Wink

  • Hopefully the antibiotics kick in soon and I can understand your pain as have had a few infections after my ops. Similar story to yours  ignoring the signs at first and then the nagging wife  lol. Nice to hear the consultant say "it's unusual for someone as young as you" lol (I was 46 first diagnosis) but hopefully they have caught it early and the CT scan will put your mind at rest. Good luck.

  • FormerMember
    FormerMember in reply to Lugsy

    ^^^^ Cheers Lugsy Thumbsup

    Kind of reassuring that there's someone else here that's around my age.

  • FormerMember
    FormerMember in reply to FormerMember

    Well a little update, just in case anyone is interested (can't fathom why you would be though, but I'm going to post this anyway). Course on anti-biotics finished, and I had my CT scan on Tuesday - all going well I thought. And then, this morning - went to the loo and lots of blood in my urine. Not what I was expecting, nor was it what I wanted to see. Had a slight ache yesterday in the side where I had the ache before my TURBT, but thought that was just due to post op pain. I'm now awaiting a call back from my CNS to see if its normal, or to see if there's anything I need to be doing next.

    As an aside, I've also managed to stop smoking - I'm on a vape, but it's a massive step forwards and carcinogen free. 

  • Hello nickfreckle. Bleeding and passing blood clots a few weeks post TURBT is common. It is usually part of the healing process. The scab from the wound breaks away and passes in the urine and can sometimes bleed. Anything too strenuous can also aggravate the wound. The usual advice is lots of water to flush things out and help prevent infection. Good to know you have contacted your CNS for advice. That's what they are there for. The CT scan is normal procedure and usually just precautionary to check there are no other nasties knocking about elsewhere. Let us know how you get on. Best wishes.

    Best wishes to All,   rily.

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  • FormerMember
    FormerMember in reply to rily

    I've just had a call from my consultant's secretary, and they've got my results back and have pulled my appointment forwards by 3 weeks. 

    I'm actually shaking as I'm typing this, as I suspect it's not going to be good news.