Hi, I'm not new on here but haven't been on for a while. If just like to check out with others what kind of monitoring they are getting following being given the all clear.
I had CIS but have been clear for two years and just had my 6th all clear. I am now on 6 monthly flexi cystoscopy check ups and have been assured by my consultant that they will be able to tell if there's a recurrence.
I should be feeling good about this but can't help feeling worried that they might not spot it as my initial diagnosis was made following a flexi cystoscopy that showed nothing (I was told I had an overactive bladder) and was only confirmed via a urine test. I would feel much more confident if I had a urine test alongside my cystoscopy at each check up now but am told it's
not necessary. Also everything I've ever read suggests that CIS is hard to pick up with a flexi cystoscopy.
I am wondering if this is just the case at my cash-strapped hospital or if it is normal practice to rely only on flexi cystoscopy for monitoring CIS. I'd love to hear what other people's experience is so as to either put my mind at rest or give me ammo to ask for urine test.
