CT RESULTS

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Hi everyone, I hope you are all keeping your spirits up and coping with all this weather .

Well its been 5 and a half weeks and i got a phonecall today about my CT . good news first ; no evidence of any lymph node involvement or metastases. Concerning news is the CT highlighted a thickened area on the right lateral wall of the bladder that is new. Don't know what it is , so having a flexi on Sept 2nd. Don't know how I feel really. Grateful there are no mets and thorax, abdo and pelvis are clear . Confused and a bit scared its a recurrence . Patches seemed easier to cope with, but thickening I wasn't prepared for and haven't heard anyone mention that before on here. Anyhow , two weeks to carryon as though all is ok, I will be fitto burst by the2nd I am sure. As always love to you all 

  • Hi Angela,

    All's well here thanks.

    Sorry to hear about the issue found on the bladder wall, anything new is so scary.

    I've not heard of this before, could this be another symptom of BCG, the inflammation created by the BCG might create this issue?

    ... Just had a little Google... We know this isn't the best thing, but it does say BCG can cause this (localised inflammation).

    Hope you get some proper answers soon.

    Wishing you all the best.

    Trevor 

  • Thanks so much Trevor. Lovely to hear from you. Yes I hope it is te BCG , going to try and put it out of my mind for 2 weeks. At least I am not waiting for the CT results now lol 

    Much love Angela x

  • So glad that the CT scan had good news Angela. It’s so long waiting and worrying all these weeks. If you possibly can focus on all the parts that show no spread. And everything crossed what they have seen is treatment related or nothing of concern. Love Joyce x

  • Try and stay calm, hard I know. I had this and it was just inflammation caused by BCG.

  • Thanks so much Joyce and you are so right, focus on the good bits. Its so easy to jump on the what if train. I am getting off it right now . Hope you are keeping well , sending you a hug x

    Much love Angela x

  • Thanks so much Leo1 , I hope mine is just the same . I have seen some of your posts and life sounds good for you now after the RC . sending you a hug x

    Much love Angela x

  • Morning Angela, good news, bad news! What a journey we are all on. Great to hear about the lymph nodes and meta bases. Let’s hope the flexible cystoscopy on the 2nd September will be good news. CoinUmbrellaidentally on the 2nd September I will be undergoing Laparoscopic Nephrectomic Treatment to remove my left kidney. However, I have a bonus before then on the 24th August a Bronchoscopy and Ebus proceUmbrellaure to take biopsies re lesion on my right lung. It’s a hard road that we travel at times. Let’s hope we both have better news and outcomes after our procedures. Torrential rain Umbrella️with thundery showers forecast. Do I or do I not go to golf or spend the morning with John Grisham? Stay well and positive X UmbrellaGolfer️‍♂️Book

    Garviv

  • Hi Angela,Great to hear there is no spread.Fingers crossed that the thickening is down to inflammation.Thinking of you,Love & hugs Jane xx

  • Morning Garviv, I love your repeat messages , its doubly supportive. It is a scary path at times , putting our trust and faith that all will be ok in the end. The daily self talk to keep us from going to the dark side and trying to be upbeat for the kids and family. We are pretty amazing as humans arent we ?

    Garviv , which of the two procedures concerns you more ?I shall be thinking of you on the 2nd and sending you oodles of positive vibes . Keeping busy and staying fit is the mantra for now. Its rainy here, so I am just going to finish off a planter I have made out of an old wooden lounger and pop to the seamstress ( she is amazing) to collect my jeans ready for Sunday when we play Bournemouth .  predicting this season will not be great but thats footy. sending you a big hug x

    Much love Angela x

  • Morning Jane , thanks so much. please god it will be nothing but bcg and I can just crack on and get ready for our break to Jersey in mid september. sending you love too x

    Much love Angela x