CT RESULTS

Halofan 1 month ago

57 replies
96 subscribers
1649 views

Hi everyone, I hope you are all keeping your spirits up and coping with all this weather .

Well its been 5 and a half weeks and i got a phonecall today about my CT . good news first ; no evidence of any lymph node involvement or metastases. Concerning news is the CT highlighted a thickened area on the right lateral wall of the bladder that is new. Don't know what it is , so having a flexi on Sept 2nd. Don't know how I feel really. Grateful there are no mets and thorax, abdo and pelvis are clear . Confused and a bit scared its a recurrence . Patches seemed easier to cope with, but thickening I wasn't prepared for and haven't heard anyone mention that before on here. Anyhow , two weeks to carryon as though all is ok, I will be fitto burst by the2nd I am sure. As always love to you all

BFG 1 month ago

Hi Angela,

All's well here thanks.

Sorry to hear about the issue found on the bladder wall, anything new is so scary.

I've not heard of this before, could this be another symptom of BCG, the inflammation created by the BCG might create this issue?

... Just had a little Google... We know this isn't the best thing, but it does say BCG can cause this (localised inflammation).

Hope you get some proper answers soon.

Wishing you all the best.

Trevor

Halofan 1 month ago in reply to BFG

Thanks so much Trevor. Lovely to hear from you. Yes I hope it is te BCG , going to try and put it out of my mind for 2 weeks. At least I am not waiting for the CT results now lol

Much love Angela x

JoyceF 1 month ago

So glad that the CT scan had good news Angela. It’s so long waiting and worrying all these weeks. If you possibly can focus on all the parts that show no spread. And everything crossed what they have seen is treatment related or nothing of concern. Love Joyce x

Leo1 1 month ago

Try and stay calm, hard I know. I had this and it was just inflammation caused by BCG.

Halofan 1 month ago in reply to JoyceF

Thanks so much Joyce and you are so right, focus on the good bits. Its so easy to jump on the what if train. I am getting off it right now . Hope you are keeping well , sending you a hug x

Much love Angela x

Halofan 1 month ago in reply to Leo1

Thanks so much Leo1 , I hope mine is just the same . I have seen some of your posts and life sounds good for you now after the RC . sending you a hug x

Much love Angela x

Garviv 1 month ago

Morning Angela, good news, bad news! What a journey we are all on. Great to hear about the lymph nodes and meta bases. Let’s hope the flexible cystoscopy on the 2nd September will be good news. Coinidentally on the 2nd September I will be undergoing Laparoscopic Nephrectomic Treatment to remove my left kidney. However, I have a bonus before then on the 24th August a Bronchoscopy and Ebus proceure to take biopsies re lesion on my right lung. It’s a hard road that we travel at times. Let’s hope we both have better news and outcomes after our procedures. Torrential rain ️with thundery showers forecast. Do I or do I not go to golf or spend the morning with John Grisham? Stay well and positive X ️️‍♂️