Update on EV and Pembro Treatment

It's seems like we are all getting different side effects, mine are that my liver enzymes keep going up so I have to stop medication until they come back down so I am a bit stop start with the treatment. I was due to have round 5 this week so hope it can go ahead next week. They said that I might have had to go on steroids with the liver issue. 

Yes good luck to us all and chins up    

Hi,
As you may know I am on the clinical trial EV-302 for EV and Pembro.
Skin rash was one of the things that caused me treatment breaks early on. I was prescribed Cetraben cream and it did work for me, so maybe ask about that?
Once I stopped having Pembro (you can only receive it for 2 years but I stopped after 18 months as that seemed to cause a lot of my side effects rather than EV), I never had skin problems again.

cheers
Chasam

You can buy Aveeno stuff from chemists, Tesco etc - I use it all the time as I have eczema so need unperfumed creams. It's mainly a moisturiser. As well as the colloidal oatmeal, which seems to be most calming for skin prone to outbreaks there are other things like hair conditioner, hand cream and general moisturisers. If you normally use  cosmetics, bodywash, soaps and creams with perfume and things like parabens in them you may find yourself reacting to them at the moment. Mine happened during a heatwave 4 years ago - heat makes it worse  I had to avoid synthetic clothing as sweat really didn't help the rash - pure cotton with no or very low elastane content worked best for me.

There's another skin brand called Epimax which has colloidal oatmeal ontmenr (and cream)  which my GP prescribed after I had a strong reaction to my chemo (Gem/Cis). That is more effective than Aveeno for a big reaction, did calm my skin well and you can buy it from the chemists too if the GP doesn't prescribe it. You have to slather it on for best results (under pure cotton clothes and you need to wash the latter well afterwards. Hope this helps.

All the best,

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