18 days after 6 weekly mitomycin treatments

oh my goodness Suescared, welcome to this friendly forum. It sounds like you are going through an exhausting time . I cant offer you any advice regarding your urgency and multiple trips to the loo, the only experience i have is following bcg treatment and its relatively shortlived. I do know to keep up with the fluids, many of us on here drink Robinsons lemon barley water but its not for everyone, and I have no evidence that it calms the bladder tbh, but it helps me because i am not a fan of plain water .My heart goes out to you , I am sure someone will be along soon with better advice that may help. I sincerely hope it settles very soon. Take care

Thank you Angela.  It just helps that you’re listening.  I appreciate your reply x

Hello Suescared I feel a bit of a fraud because I had six instillations of Mitomycin with no problems at all. The only advice I can offer is drink plenty of water and switch to decaffeinated tea/coffee. I hope things settle down soon.

Sorry to hear you are having a rough time after Mitomycin, it isn't the normal experience most seem to have after it, but it can affect some differently than others. 

When I had mine it took me a couple of days to get back to normal and same with my recent Epirubicin treatment. 

If you feel something isn't right and after 18 days I'd be asking more questions, have you had a urine test done to make sure you haven't got an Infection or something. 

Can't say I've seen many horror stories on here after mItomycin. Not to say it can't happen of course. 

I hope you can find some relief soon, just out of curiosity what was your diagnosis as maybe that might explain something or maybe not.