Reaction to BCG instillation

Hi Ang62 . Sorry to hear you are suffering adverse effects of BCG treatment. Not had this myself so not much help, but we do see similar on here from time to time. I am sure others with  experience will be along to help. In the meantime it is important you drink plenty of water to keep things flushed out. Best wishes.

Thanks Rily. 

I've never drunk so much water ️

Best wishes to you, and everyone. 

Angie

I have been taking -

1) Curcumin capsules extra strong. Just one a day. There is some evidence that it helps BCG be more effective although that was when BCG was combined with curcumin and given into the bladder. 

2) Two cups of Acerola and Juniper berry tea.

3) Two capsules of renal cytoprotective capsules available on Amazon. It is all herbal. 

4) Two litres of Lemon-Barley water with added electrolytes and vitamins. 

So far, it has helped. My side effects are usually for no more than 6 hours but during that time, it is terrible. Lot of fever, dizziness, tiredness along with haematuria [slight], pain on passing urine sometimes with loin pain and feeling of razor blades in the pipe. Often it feels like a red hot poker. Those six hours are Russian Torture. Paracetamol helps. It all ends suddenly with a bout of sweating. 

Fortunately, next Wednesday is my 6th dose and then there will be respite. 

I hope you settle down and you can complete the course. Best of luck. 

Gosh, what you've been going through sounds horrendous.  

I don't have a fever, and passing urine simply feels mildly uncomfortable.  I'm more concerned about the persistent haematuria, which seems never ending.