Recent cystoscopy

Blood in urine always needs to be investigated thoroughly which is what your GP has set in motion. So much information some of it rubbish on Google so best to stay off it if you can and wait for biopsy result.

Whatever it is you are doing the right thing getting in checked out. So well done for that. In a similar situation I did a lot of worst case scenario thinking and it didn’t help. Take each step as it comes. I send you good wishes. Lean on the people on here. They are amazing x

Hello Happyhearts, sorry to hear that you've had to undergo tests but welcome to the forum. We do our best to provide moral support on here and you'll find a wealth of different experiences that members have had as they recover from the shock of initial test results then begin to feel calmer (slightly!! ) as the path ahead becomes clearer. Inevitably, most on here will have had a definite diagnosis of bladder cancer once the pathology lab has analysed sample material, usually collected during a TURBT. I only know of one person (male, younger than you) who 10 years ago had some symptoms similar to yours, where the abnormal growths in the bladder turned out to be non-cancerous. He required a bit of treatment but has been fine since. This was considered to be an uncommon result by his medical team. However, if you are confirmed to have bladder cancer, it is one of the more treatable cancers. There are many different treatment paths, so always wait to see what the medics recommend. Don't consult google because, as Stapled suggests, the information there can vary in accuracy and is often out of date. Of course, there are respected sources of good info on the web, this being one of them. If you 'click' on the name of any forum member, you can read more details of their diagnosis and treatment if they've written a profile. Best wishes and post whenever you feel the need.  Ray 

Hi Happyhearts and welcome to this friendly group. We know how anxious the early days of uncertainty and not knowing can be. Firstly, we advise people stay away from google. There is a lot of misinformation out there. Secondly, if it does turn out to be BC, then it can be treated successfully. The procedure you will likely be having is called a TURBT (trans urethral resection of bladder tumour). Sounds worse than it is. Done under GA and usually in day surgery although plan for an overnight just in case. Any offending looking cells will be scraped away and sent for analysis. It then takes a few weeks for results. many of us here have been through this with varying experiences so always some one with answer to any questions you may have. Results determine where you go from there. Best wishes.

Thank you all so much for taking the time to reply to me, I feel deep down I do know the liklihood of the outcome (ive worked in radiography diagnostics for some time) its doesnt really hit home when its yourself, and with 3 children at home I dont want to be to vocal with whats going on so it is nice to have somewhere to come.

Come here anytime! With anything! I was so sure I would have a heart attack as lots of history in the family. Sooo shocked when I was told I had bladder cancer. Took me ages to even say the words. Lean on the good people here xx

Hi Happyhearts,Welcome to the group.I hope you will find it supportive here,we are here to help.Best wishes Jane x

Hi Happyhearts,

forget Google and trust Macmillan, Cancer Research, Action on Bladder cancer if you must search re this finding before you've had the tests.

 We've all been there, done that and are wearing our T shirts (and are still here despite blood in urine and scary things inside us)  If it is what your fear, despite your relative youth you will doubtless be fitter than most and that will help you cope with what's in front of you if anything)

You can tell us anything and someone will doubtless have experience of what you are feeling so can offer info and reassurance.

All the best

Latestart ( still here 3 years post bladder removal and enjoying 

Welcome and sorry to see you are here and worrying. 

Did they say anything about the growths they found at the cystoscopy as at mine they said it looks quite likely to be cancerous growths based on want they saw and showed me on the screen. 

Obviously just because it may look cancerous doesn't mean necessarily it is until the biopsy and pathology is done to confrm or rule out. 

It does get easier once you know what you are dealing with and what the next steps are, whether it's non invasive or invasive and the grading it's never going to be an easy ride if so, but many go on to good fortunes. People hear the word cancer and imagine it's automatically a death sentence. 

But as has been said the waiting is by far the worst bit you have to concentrate on right, as of now you may or may not have cancer, but you don't know you do yet. So try to not to worry uncontrollably over something you can't really control right now. 

Fingers crossed it turns out to be benign growths for you. But if not we are all here for you every step of the way to help where we can and be an ear to listen or offer advice and support. 

Oh and I'm approaching 2 years on this road trip so far. 

Mine was pTa grade 2 aka low grade non muscle invasive cancer. 

I  had several recurrences removed over that time, mostly small recurrences during 3 monthly checks. I've had 6 weeks of mitomycin into my bladder and that didn't work and I've got one left to go of epirubicin to see if that works, and will know the results of that after my next rigid cystoscopy and results in hopefully the next couple of months. 

I just keep going with the flow and use the support on here when I need it and from family and friends.