Turbts tingling

Are you drinking enough? I drink like a fish after a TURNT or cystoscopy for a couple of days to make sure things are flushed through. Pain can last a while tbh and blood so it's important to drink plenty and ensure no blood clots etc until fully healed. 4 or 5 days after the pain was agonizing when urinating but that died down after that. But tingling sensations etc last quite a while after a cystoscopy for me at least. There will be some trauma to the urethra as it's not meant to have something shoved down it and ite quite large the cytoscope. You will likely have healed well before your next one so it won't be any worse or shouldn't be so try not to worry about that. 

Have you had a urine check to make sure you don't have a urine infection to be sure as well. Tingling or burning can be a sign of infection as well. 

Yep no uti at all. Pain is really getting me down tbh

You mentioned a catheter but also having to get up at night. Have you still got the catheter - perhaps with a valve? If so, maybe you need a 2000ml night bag to allow continuous draining overnight. 22CH is indeed at  the higher end of urethral catheter sizes, being 7.3mm diameter. 22CH is also the typical size of the rigid cystoscope used for a TURBT. When I had my two TURBTs in 2018, I felt internally bruised for a couple of weeks afterwards but for various reasons I've had to have a 16CH Foley urethral catheter since then, replaced at 12 weeks or when blocked. The frequent urethral insertions plus fragile scar tissue resulting from medium dose palliative radiotherapy then two TURBTs to remove a 7cm bladder lesion still tends to bleed now and then, 7 years later. As Simon says, drinking a decent amount of water helps to prevent problems after a TURBT. 2 to 4 litres per day is typical for many of us on here. Unfortunately, beer is not recommended . Vigorous/heavy exercise should also be avoided until you have healed properly but consult your medical team for guidance or if you are concerned about lingering symptoms. I hope your pain and blood seepage ease soon.  

Billyboy - I too was diagnosed with TaG2 [20% high grade] Intermediate risk. Day after TURBT done 6 weeks ago, I had Mitomycin intravesical which they give to all. I had intense cystitis and had persistent dysuria, blood etc etc for a few days and then it all subsided somewhat. A Double J stent was also inserted and removed three weeks later. At that time, they found inflammed bladder, lot of debris and two tiny 5 mm very flat nodules. The junior doctor doing the procedure said they are early bladder cancer. I was doubtful. The first TURBT was so thorough and the surgeon doing that was positive it was all out. So clearly something was not right. I checked with a school friend in US who suggested t may be due to Mitomycin which is notorious for that in 8% of people. He reassured me that it will be oncologically better stronger the response. And lo behold four and half weeks later i had severe bleeding, urgency dysuria etc etc. The first night it happened, I was passing blood whole night every hour. I started myself on Co-Amoxiclav and it settled in two days. I had a second TURBT yesterday and the surgeon found an extensive area of necrosis and ulceration. She excised it all; found no evidence of the two little 5 mm nodules and stopped the bleeding with diathermy. She found no tumour. She told me, it was all inflammation. Knowledge of Mitomycin delayed reaction is not well appreciated among UK urologists. So dug out a paper from Ann Arbor hospital in US and that showed me that this is almost certainly due to Mitomycin. I am waiting for the histology. If it shows Eosinophillic infiltrate, it confirms the diagnosis. I hope to get the report by 7th Jan. I tried to enclose the paper but this site does not allow.

Do not worry - worse the reaction, more effective it is against the infernal cancer cells.

Incidentally, there was no infection on testing urine. There were 100 white cells however, which happens with inflammation. 

Catheter was only in for 3 days but screamed when they removed it. So painful

I had a catheter in for 8 days after my last cystoscopy and it caused me untold grief and pain and soreness. I also ended up with urine infections but managed to get it removed, but I'll be honest it bloody hurt coming out. Second I've ever had and first one was taken out after op and didn't feel a thing but that's possibly due to all the drugs for being knocked out possibly. 

I never got Mitomycin during any of my TURBT's but had a 6 week course and it didn't work but I had no real side effects to worry about. I'm now due to start Ethrubacin in Jan as an alternative to try and stop the recurrences because the MMC didn't work. 

I was peeing 60 times a day when on BCG. It was grim.Hope you improve soon.

Leo1 - How long did it take to settle down? ; each time.