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Hi all hope you are all well.

I had my meeting with he consultant for op and oncology results a couple of weeks ago, and it was positive the consultant said there was now no cancer that he could tell. BUT and there is always a but , the cancer was in my left lymph node and had breached the lymph node.

He said he couldn't do a MRI for 3 months as that would be the first time he would possibly be able to see anything and has recommended chemo . Oncology haven't been in touch yet to organise that.

I guess my question is , how would you guys feel about that news ?

I was initially so relieved and happy but I'm a bit wobbly on the thought of it now , could it still be there? I guess so , i feel a bit deflated now . Like I was planning my return to work told all my family and friends and work colleagues, its gone! And in the back of my head it's like umm but has it ?

Just wondered your opinions and if I'm just being pessimistic, I mean when you have had cancer , are you ever fully clear or do we just think I'm clear for now ...maybe that's enough.

I'm still recovering from the radical cystectomy and hysterectomy, which seems a slow process and still in pain at times which you would expect. I am terrible at the resting thing , and sometimes do too much and my body let's me know.

Hard to stop your mind running away with you. But perhaps it's best to just enjoy these days of sun and stop over thinking .

Thanks in advance for your thoughts and enjoy the weather if you can

Kerry x

RayMK 1 hour ago

Hello Kerry, I can understand your roller coaster emotions. They are quite natural as there is a lot to take in during each stage of treatment. Cancer which has been successfully treated is generally termed as being 'in remission' rather than cured. It's not because consultants are hedging their bets but more a case of using all appropriate methods to try to detect any tiny lingering groups of rogue cells. Pre-emptive chemo or other treatments are aimed at eradicating such cells even if they cannot yet show up on tests. You have reached a good point in your treatment path. Lots of us eventually adopt a 'take each day as it comes' approach in order to turn the worries down a bit. I've been doing so since 2018. Good luck, best wishes and enjoy(?) the oppressive heat. A bit of rain would be welcome. Ray x

Podperson 1 hour ago in reply to RayMK

Thank you that makes sense x

Teasswill 1 hour ago

I think we're particularly vulnerable in the post op recovery phase - emotions can be very fragile. Bizarrely, when my consultant came to see me immediately post op and said there was no sign of spread, I had to remind myself that cancer was the reason I had the op - I think I had got so focussed on having this new-fangled neobladder and how to manage recovery, I had momentarily forgotten the cause.

Even though my post op report was clear, and he told me I was 95% likelihood cured, I am still on life time follow up and am relived every time the check up results are OK. So you have had all the upheaval of a major op & are now faced with more preventative treatment. No wonder your head is in a spin. Try to think of it as belt and braces, for best chance of cure. Best wishes.

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