Husband's TURBT journey and severe hip/knee pain

Hi B2theC . Sorry to hear your husband is in so much pain without any real reason for it. Hopefully the specialist can get to the bottom of it. Good to know he had his TURBT but with a bit of a blip. Good luck with his results. I hope all goes well with everything. Best wishes.

Sorry to hear this.I hope the private specialist can advise  and that you don’t have to wait long.Your poor husband,fingers crossed for answers and help asap.Love Jane x

Goodness that's a collection of problems.

Has your husband got good bone density? I ask because I once had a spontaneous hip fracture as I was walking along the street - no fall. The horrible pain before it broke I'd put down to sciatica but it was worse after it broke - I was on morphine while they found someone to operate - 5 days. There was an obvious break which showed up clearly on everything.

This had nothing to do with my bladder cancer - 8 years before it- and was caused by osteoporosis and the treatment I'd been having for it (alendronic acid) not working. And led to me getting some much better ttreatment for the bones and a new hip.

What I know about bone density is that if it's poor it doesn't always show up on X-rays. You need a Dexa scan to show it. Orthopaedic surgeons, while they mend  hips are not always expert in osteoporosis, I see a rheumatologist for that.

Several years before that I did fall in the street and A&E X-rayed my humerus and sent me home saying there was nothing wrong, despite shoulder pain. 3 days after that the consultant rang me at home and told me that I had a crack but it hadn't been easily visible for the junior doctors. That's how I found out I had bone density problems in the first place.

Many men of a certain age do have osteoporosis but it isn't well known, people think of it as a woman's disease.

I'm not saying your husband has it but I do think you need to ask the hip specialist about it and see a rheumatologist if needed.

It might also be osteoarthritis, or one of the other types of arthritis which are also very painful. And again a rheumatologist would be able to tell. They can do blood tests - my husband is having treatment for an inflammatory arthritis at the moment which is very painful  and I have also had osteoarthritis for nearly 40 years.

Good luck, 

Latestart

Thank you rily!

Thank you Jane x

Thank you Latestart. His bloods were all fine and the CTs/MRIs came back all clear - it just doesn't make sense! Hopefully, the specialist will be able to help and I'll ask about your suggestions. He was sobbing with the pain in a packed a&e and he literally can't put any weight on it...he's even having to lie in the boot across flattened seats as he can't sit. I don't like the reliance on morphine either! 

xx

That doesn’t sound right at all.Something must have happened.My late mum had a spontaneous spinal fracture due to weak bones.It seems odd if something showed up on the first x Ray that the others tests are clear.I really feel for your husband he needs some answers quickly.Jane x

I can empathise re the pain. I do hope they sort him out quickly xx

Absolutely! The consultants said that they have no idea what the 'junior' Dr saw as the x-rays they looked at were clear. I have requested all imaging in readiness for the hip specialist, though I guess he may want to arrange his own scan! The pain started gradually over 5 to 6 weeks ago - first in the lower back and side and we initially thought the worse in terms of spread. After the urologist did a CT scan to check kidneys and that came back fine, we thought it was from canoeing and driving our van but then it escalated to chronic, unbearable pain in the hip/groin and knee and again, we thought the worst! It's hard not to!

Something surely has to show up.I had a lot of back pain and was worried about spread.My health centre is useless but they do have a good physio.She was so concerned about spinal cord compression that they arranged for an ambulance to take me into hospital the next day.I had an MRI scan and eventually after much discussion with another hospital they concluded that it was all down to severe arthritis.It does sound concerning that your husband can’t weight bear.I would go back to A & E if the pain doesn’t decrease.They missed my mothers fracture and one of the physios said mum was being lazy not trying to walk.I had never seen mum  in so much pain so I had to have words with the physio,awful woman.xx