Getting a bit fed up with waiting...

Hi Rob, 

Best of luck on Wednesday, sorry to hear things are dragging on for you.

I didn't actually get a result from my first TURBT as they couldn't distinguish where the sample came from or something along those lines.

I had my 2nd TURBT in February 2023 and started my BCG induction in April 2023. 

I think they probably want to discuss the options, after my 2nd TURBT consultation they discussed both RC and BCG, but I struggled to take alot in, but took my wife with me which helped.

So for tips, if you can take someone with you, maybe take a note pad and a pen.

You will get documents about the BCG processes. There seems to be a variety of total maintenance instillations depending on trustis so might be worth asking how many etc.

The discussion on RC was an option that they also discussed with me. I was adamant that I didn't want to lose my bladder (although reading other peoples experiences on here have opened me up to this option should it be needed).

I hope you get some answers soon.

Keep us posted.

Trevor 

Hi Trevor

Thanks for your input and advice.  I think I'm like you in that I'm still in that phase where I'm not wanting to lose my bladder, but as you point out the people here that have had RC do appear to be coping well.

I'll keep my ears and eyes open and take someone with me.  In some ways it's good that the consultants go through all the options at least I'll know where I stand.

I've already been given all the booklets and info after my 1st TURBT so I think that led me to think we'd go straight to treatment. Still the more knowledge I have the more in control I feel.

Thanks

Rob