Pathology results

Hi again Sarahto . Good to know the path results are back and not too bad in the great scheme of things. Not had this treatment myself but we know it affects people in different ways. You cannot predict how you will react. Hopefully someone will be along to share experiences. Best wishes.

Hi Sarahto,Best wishes for your treatment.I expect someone with experience will be along soon to tell you what to expect.I hope all goes well.Jane x

I hope so as I’m quite anxious about this treatment. 
Thank you for replying

I’m sure they will as there are several people on here who have had or are undergoing chemo.I only had surgery so not any help to you.Most have not had too many bad side effects though so fingers crossed for you.Jane x

Hi Sarah 

Now you know your Results and a plan is in place things should start to fall into place for you I had the same Diagnosis as you I am now over a year out from my diagnosis and hopefully one clear follow up cystocopy from being moved to yearly checks didn’t have any follow up bladder installations as I went straight on to surveillance as my second TURBT was completely Clear and was decided at MDT this would be my way forward who am I to argue so far so good all the best to you 

Ste 

Thank you so much for taking your time to reply. Very helpful and gives me confidence going forward. Hopefully all will go well. 

Very similar to my situation no symptoms noticed until I had a frank hematuria episode. 

1cm TA tumour grade 2, had cystoscopy to remove the rumour but couldn't have the chemo drug installed into my bladder at removal because dog resection on the left ureteric orifice. 

Had a very small recurrence in my anterior urethra which was washed away with water irrigation. 

Said if I get an recurrence on my checks would then do the chemo instillation into bladder next time upon removal. 

So far so good just had my yearly blood sample taken for check up and also awaiting my 3 monthly cystoscopy check up. 

Always good when it's caught early and often urinating more than normal and tumours bleeding is very common as it was explained to me. Tumours feed on blood effectively and often burst at some point. 

Good yours was also caught early and lots of positive stories on here even for people with more several and more invasive rumours. 

So good luck with you journey. Plenty of good advice on here and people to listen and offer advice. 

I can't help on the chemo instillation as I've not had any as yet as not required for me currently. 

Thank you Simon. I’m pretty overwhelmed by it all to be honest. I will be glad to get first treatment out of the way so I know what you expect. 

hi Sarahto I had the same diagnosis as you back in  Dec 24. I had the 6 weeks of mitomycin (chemo) and found it pretty manageable (I’m 44). Other than being undignified it’s quite quick to instil, I stayed in hospital for an hour until I voided it out. I kept the area very clean with gentle soap & water and was lucky to avoid a UTI and had no other symptoms, carried on working a busy job and have 6 year old twins too but I know everyone can be affected differently. 

Unfortunately since then my cystoscopy this week has shown a recurrence of multiple tumours, so awaiting second TURBT. Disappointing the chemo didn’t work at all for me and how quick they have grown (I only finished 6 weeks ago) but perhaps v unlucky as I know many people have no recurrence after, so of course wishing you all the best with yours and I hope it’s tolerable for you also.