First TURBT plus 3 days

Hi Rob,I hope you will take it easy.Sometimes the tumour is bigger than first seen on scans etc.It’s common to have a second TURBT a few weeks after the first where tumour is removed if necessary and more biopsies taken.Not everyone has to have 2 TURBT’S but most of us did.The staging and grade of the cancer plus the cancer type will decide what treatment will be best.Take care Jane x

Thanks Jane. right now I'd do anything not to have another catheter, hated it, but es, I've got th impression I may well need a second TURBT later on.

Hi Rob,Second TURBT’S are usually easier than the first.I had several in the past for chronic bladder disease.Catheters are not great but hopefully it wouldn’t be in for long.

Hi Rob,

Glad you got your TURBT out of the way and you've got the catheter out. 

Those pesky catheters, hated mine and I only had them in for 7 hour's.

Hope you get your results soon.

Take it easy.

Trevor 

Hi Rob 

Try not to overthink the comments you have read on the write up after your initial procedure but obviously do keep them in mind for after your MDT meeting when you have your next chat with the consultant there is a big positive in their all resected comment which at this point is the main thing try and concentrate on your recovery and what you will ask when you see them next I had worrying feedback after my initial Scans and TURBT which made them feel the need to give me a second TURBT and a ureterscopy which they didn’t end up doing the ureterscopy  in the end early days for you yet they still doing their groundwork at this point so to speak take care and all the best 

Ste 

Hi

Thanks for your input. I know you're right and I'm clutching at straws, the waiting is so damn hard. Taking deep breaths... 

Rob

Hi Rob 

Of course it is Rob and we have all been there it’s the are they hiding something from me what about this what about that and as patients we always think the worst the not knowing is terrible but the medical team will not want to burden us anymore than they need to I found they tend to load the bases early doors and maybe explore more which is a good thing really hope you hear some more positive news in the coming weeks and you can settle into your treatment plan they will have for you and set your mind at rest 

Ste 

Hello Rob, the waiting is a worrying time. Mum was diagnosed April 24. When they removed the tumour from her bladder, they told her it looked unusual.  It was removed with no general, she didn’t want to take any risks and opted for this cos she is 80. She didn’t like to ask anything in case the info worried her, and tbh they probs couldn’t tell her much till the biopsy was done. A few weeks went by and although they termed the tumour aggressive, it hadn’t penetrated the muscle wall.

They reckon she’s had the tumour for over a year and scans showed no spread. She has finished her first 6 BCG treatments and doing ok.

Initially I was on here to connect with folk who have melanoma. Then mum was also diagnosed. It’s such a helpful site and Im able to share people’s stories with mum as she isn’t online. 

Mums not one for napping and does get tired and annoyed at herself for that. She’s a retired nurse and I think in general they are the worse patients.

Take things easy & preserve energy!xx

Hi Hevallan,Thanks so much for taking the time to comment, your input is appreciated.  All the commenrs from the community here have been so helpful and kept me and I'm sure others feeling positive.