Extreme pain during and after Radiotherapy

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Has anyone experienced extreme pain during and after Radiotherapy?

My had finished 4 weeks of radiotherapy just over two weeks ago, and his symptoms just seem to be getting worse.

He now has a catheter in to help minimise getting up in the night, but is still only managing max 2 hours before being woken up in pain, regular pain throughout the day also, where t takes breath away. He is really struggling, just can't see him getting any better, he is very weak.

We had CT scan Friday and hasn't spread but bowel and bladder looked very inflamed but they said that's normal after Radiotherapy.

Has anyone else experienced severe pain for about 4 weeks, did it get better? How long did it take? 

Dad's mental health is also really suffering as he just doesn't seem to be getting a break from the pain.

Thanks x

  • Hi  . Sorry to hear your Dad is suffering following RT. Radiotherapy does keep on working for a couple of weeks after the end of treatment but side effects tend to gradually wear off. I was fortunate not to have any serious side effects, only erratic bowels for a while. Good to know there is no sign of spread. Hopefully your Dad's team will help with the pain relief. In the meantime, it is important for Dad to drink plenty of water. People recommend a drop of lemon barley to help get it down and help soothe the inflammation. Best wishes.

    Best wishes to All,   rily.

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  • I echo rily's comments and advice.  My radiotherapy (bladder) was conducted in 2017 but was just 2 weeks of 'moderate' dose, aiming to subdue a 7cm lesion. I did not feel anything during each session although by week 2 my bowels were becoming unpredictable.  Depending on the length of the treatment, dosage and the sensitivities of each patient, side effects can include sunburn type effects on external skin even though the beam is not in focus there. Internally, at the focal point, the beam is more intense, hence the possibility of considerable soreness and pain until the target area heals. Drinking non-irritating fluids can help, as can appropriate painkillers. See if you can obtain further advice from your Dad's cancer team, the Oncology department and/or the GP. The after effects of treatment can indeed impact mental health, often as much as the underlying cause being treated. Many of us on the forum struggle with these aspects. We will all do our best to listen and be supportive. Best wishes to both of you.

    Ray