First TURBT !

  • 14 replies
  • 70 subscribers
  • 200 views

Well, here we are - very early for my first TURBT. The Treatment centre isn’t even open yet…We couldn’t sleep so just thought getting here was a good idea.

Im so scared about what they’re going to find. My abdominal pains have got worse and are now more or less permanent as of yesterday. 
Im worried about the wait for treatment but am trying to focus on getting today done.

i know you’ve all been here. I know you have all felt these anxieties.

Thank you for your support I think I’m going to be leaning quite heavily on this amazing group for some time. I hope I can offer something back too.

I hope everyone has a wonderful day and ‘see’ you later!
Love and thanks, Nikki 

  • Morning Nikki 

    I was out of my mind with anxiety the morning I had mine and wish I’d of joined the forum before I had never been put to sleep and I  think that worried me more than the procedure itself but I can assure you it’s really really straightforward it felt like I’d just had a afternoon snooze on the sofa it was that quick wasn’t in any pain when I woke up ok I had a catheter in but that wasn’t to bad the nurses were great once I had come round properly I was presented with a hot drink a sandwich and some biscuits best of luck to you and when you wake up from your TURBT remember the unwanted lodger will have been evicted all the best 

    Ste 

  • Good luck Nikki,thinking of you and sending hugs.It’s not a long procedure.Love Jane xx

  • Morning Nikki, well done fir getting there early. You will be in very good hands, and your procedure will be over before you know it. I hope all goes well and wish you a speedy recovery. LEO

  • Morning  . Just look forward to tea and toast when you wake up. Best wishes.

    Best wishes to All,   rily.

    Community Champion Badge

    What is a Community Champion ?

  • morning Nikki, sending you some love . Best wishes for the op, it is fairly quick. Ste is right about the unwanted lodger 

    Much love Angela x

  • Good luck Nikki, thinking of you. Love Lynn x

  • Hi all - well, what an astonishing day this has been!

    I can now say with the greatest of confidence that as we are all in very safe hands when having a turbt it really helps to try to trust that and divert the energy needed for worrying to focussing on getting the dat done.
    Something I’ve learnt from this group and was able to put into practice today. 

    The whole team were amazing and the experience was  smooth, professional, caring and reassuring from the beginning. 

    I met with the surgeon and anaesthetist beforehand. I learnt that my lesion was small so should be excised very easily in a single turbt..I mentioned my pains and was reassured that even a tiny lesion could cause this.

    the op took around 30 minutes I was told and I was woken up about 15 mins later in recovery with the Mitomycin wash doing its thing. I wasn’t in any pain and the catheter came out easily. 

    After a sandwich, a cuppa, a clear wee and another quick chat with the surgeons who told me the lesion was all out as far as they were concerned and they expected it’s low risk status to stand (pending pathology) I met my husband in the entrance hall and we took the bus home. 

    I’m very tired, have a sore throat and a few twinges in my abdomen (my gnawing pains having disappeared!) and a slight burning when I wee but so far so very good. Thanks so much for the barley water tip - it’s going down a treat. 

    Tomorrow’s another day but for now I’m feeling ok.

    I’m fully aware that if the surgeons had not been quite so optimistic about my lesion I may well be feeling differently. I’m also aware that its status may change after pathology but I’m trying really hard not to dwell on that for now. 
    Oh and I requested a number so I can speak to the urology office (and hopefully a member of the team if I need to) directly so that’s also helped put my mind at rest now I can speak to someone who knows what’s going on with my bladder! 

    Thank you all for your wonderful support and I hope that anyone new here reading my account will at least be a little less terrified of their first TURBT! 

    Have a lovely weekend everyone. x

  • Hi Nikink 

    So pleased to hear everything went well for you.

    Remember to take it easy though for a few weeks. No heavy lifting etc, it's easy to forget when you're feeling better.

    Take care and wishing you all the best.

    Trevor 

  • So glad it all went well.Take it easy no heavy lifting for a few weeks while you heal and plenty of fluids.Love Jane xx

  • Thank you Trevor, yes I will. I’ve got a pile of books to read and now my mind is a little quieter I think I’ll be able to tackle them! Best wishes to you x