I am ready to give up

You need to contact your support nurse and tell them what is happening, you need your pain medication changing. Have they mentioned a catheter so you're not on the toilet all the time? Hope you can access some help, don't give up, I know it's hard but your life is valuable- there's help out there 

Carolyn is correct. Contact someone in your medical team. I do hope you are feeling better soon. Garviv

It sounds like hell. But as others have said you must contact your support nurse and enlist their help. They are often the key to getting help. Pivotal in fact. I really hope you get some help very soon, there is usually a solution to help, which your medical team can implement. Leo

Hi Irinacat,I’m so sorry you are in so much pain.I have been in your situation and know how miserable it is.Definitely contact your team and explain how much pain you are in.How much fluid are you drinking ? As much as you don’t want to be going every few minutes the less you drink the worse the pain will be.It’s important to make sure your urine is re tested to see whether the infection has cleared following the antibiotics.Some infections are more persistent than others so you may need more than one course of antibiotics.Please don’t give up there will be a solution for you.I hope you feel better soon.Love Jane xx

Thank you so much for mentioning the catheter, carolly! Yesterday I insisted on putting it in and slept through the night first time in three months!

That's great!! It makes a difference doesn't it Well done for asking.  

Hi Irinacat , thats so good to hear . sleep is so important for physical healing and mental health too. Hopefully getting back on track with your treatment plan . Best wishes and take care 

Hi, hope you’re feeling better today and managed to contact your support nurse too.  I just wanted to reiterate how important it is to drink loads.  Have you tried Robinson’s Lemon Barley?  The barley in it helps to neutralise the acid in the urine.  Good luck and I hope you can do something nice and festive to take your mind off it a bit 

I will definitely try it, thank you!

I feel for you having been through that cycle of pain and UTI’s. Being told  by consultants that they had no idea where the pain was coming from and getting nowhere. Tests for UTI’s often came back negative and I felt I was a fraud sometimes they were positive and every time I had the same symptoms. Pain  going for a wee every 10 mins it was a nightmare. Treated for overactive bladder  had Botox twice. Look at my profile for more. BUT at the moment I have not got that awful pain and my bladder is so much better. I had the cancer removed in Oct  and a ct scan had found no cancer cells. I have had 3 treatments of the bcg .