I’ve had my 11th BCG and go for my scan Friday.
I absolutely hate BCG this last lot caused fatigue so bad that I have cut my hours at work.
if this scan is clear I want to stop the BCG as I’m confident that it will not return (positive thoughts)
I just want my life back now.
please could I get some thoughts on this?
Hi Pegasus, my husband was advised to stop BCG after his 11th session due to very bad side effects. This was in May 2022 and his scopes since have been clear. He has now moved to 6 monthly check ups. There has been no mention of any further BCG treatments. Being clear after the first 6 and with 5 further maintenance doses perhaps they feel that is sufficient? Obviously each case can vary so I'm sure you will follow advice for your particular situation.
Hope this helps, Mo
I wasn't offered BCG as mine was muscle-invasive. And having my bladder removed wasn't as scary as people think. But I thought I would pass on something I read in the Guardian today (G2 section about recent research on the brain microbiome), which may interest all those on BCG treatment.
Apparently doctors are now seeing a reduction in risk of Dementia after BCG treatment for bladder cancer, so you may all be having something with even longer-term benefits!
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