Tumour found during cystoscopy

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Hi everyone, my husband had blood in his urine for six weeks,it was first thought it was a water infection and treated with antibiotics,they didnt work so they then thought it was a kidney infection and treated with more antibiotics but nothing changed so they sent him for a cystoscopy..I do apologise if I've misspelt that ! During the procedure the consultant found a large tumour,he has had a ct scan and we are now waiting on the results of that...to add,he has had prostate cancer for the past 15 years which has been successfully managed with zoladex ( no surgery) the consultant thinks this tumour has nothing to do with his prostate cancer as his psa levels are so low.he has lost 2 stone in weight we are all so worried.just wondering what's the next step.thanks for reading.

  • Thanks Angela. My reaction was of frustration at not being able to move. After a couple of hours it wore off. Since I hadn’t moved for 3 hours I didn’t feel exhausted, love, John x

  • Dear Positivity2000, as others have said, we've all been through the blood, cystoscopy followed by a Turbt and then some of us have bcg and others like me have the bladder removed and then a stoma (with a bag) or a neobladder. There will likely be chemotherapy if the bladder is removed, I had it before the op and I think that's generally the rule these days. 

    They showed me my tumour during cytoscopy (though didn't confirm it was one). And all I could think of was Dennis the Menace - the top bit looked just like his hair. And after that I decided not to be afraid. 

    Macmillan has an excellent booklet on bladder cancer that will give you very clear info. You can read online, download or get a hard copy.

    These days treatment is effective and, although, being diagnosed is shocking (as I'm sure you remember from the prostate experience) and chemo is never much fun, once you get through treatment, life can return to normal fairly quickly. There are lots of us enjoying life after treatment

    So my only real advice is to try and take things as they come, it is possible to cope. Try not to worry too much either, it wastes energy you could preserve to deal with whatever treatment the doctors advise. I'm a 72 year old female by the way, in case that reassures you that this thing is possible. And I'm not the oldest in this group either.

    Good luck,

    Latestart

  • Hi Wally B, (& others interested in spinal  anaesthesia)

    My husband had his knee replaced in May via a spinal anaesthetic - 3 days after his 80th birthday. I wondered what it was like hearing all the 'carpentry' as they cut out the bone and inserted a plastic and metal prosthesis and he said he felt nothing and the noise didn't bother him. I was glad he didn't have a GA as he had a triple bypass 2 years before. He recovered v quickly, moved from a walker to crutches before leaving hospital. 2 days later he was using a stick and stopped that only a month or two later. He has decided not to play tennis again but we walk a lot every day. I think I'd try a spinal too if offered one.

    I hope you bounce back v qquicklyand the results are good

    Latestart

  • Oh thankyou for your kind positive words.im so glad I joined this forum xx

  • Thanks Latestart. I have a friend who had two new knees and on each occasion had a spinal injection without any problems at all. My cns describes me as very laid back so I have no problem in dealing with these regular interventions. Thanks for your kind words, John.