TURBT 4th October

Well done Deacon you are over the first hurdle now so it’s just a matter of waiting for results and many of us, myself included know how stressful that can be. Lots of lovely, genuine and helpful friends on this forum willing to share their experiences and offer advice and support, so keep in touch and take care 

I've had two TURBT's now in the last 5 weeks - both times I was told at least 24hrs but the 2nd one also said once you are up and about I.e. Walking around.

Update after my last posts. Biopsy results came back and tumour is at least T1 but they were unsure if it could be as high as T3 so I was called for second TURBT which I had yesterday. Home this morning with much more blood and a bit more pain than before but not too bad. Surgeon took more tumour and tissue but I have been told that i may need cysttectomy in the new year. There seems to be some discussion within the MDT about this and I think this is why they wanted a second look. Trying not to think too far ahead at this stage. MDT will review on 19th November and I should have a treatment plan after that. It all still feels a bit up in the air, though I'm glad they are being thorough before recommending anything really radical! I guess for now it is more 'wait and see'

Hi Deacon P . Try not to overthink about having a second TURBT. It is standard in most cases. It gives them a more accurate diagnosis and checks they have missed nothing. One step at a time. Keep up with plenty of water to keep things flushed out. I hope all goes well. Best wishes.

I daresay that was a shock for you. When I went for my TURBT results, I was expecting to be told surveillance for recurrences, as had happened to my brother  a few years before. I felt sick when they said mine was high grade and I might need cystectomy.

After the relevant tests, I was given a choice of BCG or cystectomy and in the end actually chose surgery. All a bit daunting at first, but once you have a treatment plan, you have something to focus on. Best wishes.

Hi Deacon,

Either way seems to work, depending on what's needed. I had my bladder removed nearly 2 years ago and it was not as tough as I expected and managing a stoma is OK once you are used to it. I would recommend finding out as much as you can about that and the neobladder while you wait - no knowledge is wasted in this circumstance. Good luck.

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