Loss of balance after GA and TURBT

Hi Elfi . We know GA can have adverse effects on some people but it generally passes. Having been on here for some time, I cannot recall anyone having balancing problems, and such long term effects. Are you having any further tests ? Best wishes.

Latest is to refer me to ENT in case its inner ear problem but that was dismissed by A and E early on when I had bladder problems after 6 more Mitomycin. I have exercises from a physio but no improvement (if anything it's a little worse). Others have suggested reaction to mitomycin or the position they put you in for TURBT. I had biopsies and TULA for red patches recently under local anaesthetic. I'm now frightened of having to have another GA.

Hi. I’m sorry to hear that you’re having ongoing balance since your TURBT. If it’s continuing 7 months later, it may not be connected to your treatment. Do you have any mobility issues, joint problems, heart disease or other medical issues/ medications?? Any ear symptoms although unlikely to be ear related if no vertigo. Any vision problems? Have you been seen by your GP for this problem? If there are no issues related to above, then you may need to be referred to a ‘balance clinic’ in your hospital where you can be assessed more thoroughly and may be referred for some ‘balance physiotherapy’. In the meantime, you may like to try ‘Cooksey Cawthorne exercises’ which can sometimes help with the balance. You can download a free copy from the internet. Also try to stay as mobile as possible as many patients would be too afraid to be active which can be counterproductive. Best wishes for you.

Always check with a good pharmacist, preferably one who knows you. Ask if it would be Ok to try taking raw root ginger daily. The point of this is that it can dilate very fine capillary blood vessels. This can sometimes help the body heal itself, including balance organ problems that may not show up on a scan. The amount I took when I had post-flying-with-catarrh issues would be like a pound coin sized slice, twice a day. You can cut it smaller and pop it in muesli soaked overnight, or eat it with a square of dark chocolate chewed but not swallowed, then eat the ginger and chase with a second square. The dark choc stops it burning your mouth.

I take a smaller amount just in the muesli as maintenance, it also helps keep toes, fingers and ears warm in cold weather.

I do hope you find some help soon, the specialist balance clinic Hopeful786 mentions would be a good try too.

Denby

Thank you for your suggestions. I will try them .  I'm only convinced it's related to the TURBT/GA as it came one week later, and I felt something go wrong in my head - suddenly felt really light headed. I've not had any joint or mobility problems before. I was on permanent rivaroxaban for a DVT in 2021 but I have stopped taking it.  My vision has deteriorated but i needed new glasses. My GP finally referred me to a neurologist but it's taking a year to be seen. I am paying for a few sessions with a balance physiotherapist. Must admit, I am reluctant to go out as much as I did - I appear to be drunk (and I don't drink). But am trying to keep active.