Waiting for results

Haha, oh yes that was one of my first questions to the nurses too! 

Hi Gareth, gosh so much to take in and thank you for your reply, so pleased I found this forum before my appointment, I would have definitely been overwhelmed without all the help and advice I have so kindly been given on here, I am so grateful already

Hi Sharon! Sorry to hear about you’re story but stay positive, 

I had my first TURBT on may the 4th and received my results on the 21st of June, it was a 7 week wait, but all in all it was worth the wait as it was benign! The long waiting period was due to the results being sent back multiple times for further tests to ensure they were correct. Upon receiving the results he said I was his third benign bladder tumour that week, which he said is unheard of, he blamed the increase in tumour growths on covid, due to isolation everyone’s immunity was low. 

For reference I had a 2cm tumour.

I’m just sharing to say there is always hope, and whatever happens I’m sure it’ll be okay. 

Jake.

Jake, that’s really interesting about Covid. I suspect more unforeseen side effects and knock on effects will creep out of the woodwork.

Hi Jake, thank you for sharing your positive story, I’m keeping everything crossed I will be in your camp!

Good luck today 

Hi everyone, I would like to thank you all for your support on here as it helped me prepare for my results today. Unfortunately it did not go well. I had the best plan to go in there with a list of questions and to ask if I could record the meeting, hubby prepped to ask anything I may forget. Well, phone and list left in car due to panic as we were running late due to traffic jam! Anyway walked into a room of 4 people, lovely consultant explained I had aggressive muscle invasive cancer, with a few varieties of cancer present as well (not his exact words I may add). As you all prepared me for, I was given a truck load of info, not much has sunk in yet, but to sum up I need PET scan, some nuclear thingy on my kidneys, 9 weeks of chemo and then bladder removal along with uterus and ovaries etc.

Still feeling a bit numb at the moment to be honest, I’m a very pragmatic person as a rule but finding it a bit hard to hold it together at the moment

Hi Sharon,Hugs,I’m sorry it’s muscle invasive.It’s a shock and a lot to take in and adjust to.We are all here for you and can offer support and advice as you move forward with treatment.Love Jane xx

Hi SharonO, I'm so sorry to hear its muscle invasive. Not the news any of us wanted for you. There are lots of people on here who have had Bladder removal and will support you through this journey, as will all of us on here. Take it one day at a time.

Sending you and your husband love and hugs.

Ade xx

Hi SharonO . Not the news you were hoping for and a lot to take in. Early days yet, but once you start on treatment path, you have something positive to focus on. These extra checks are par for the course and gives them a more detailed picture of what they are dealing with. I had six sessions of chemo, (usually gemcitabine and cisplatin) and tolerated it quite well. I was also Muscle invasive and that was ten years ago. When you get your report through, you will find things easier to digest. Best wishes.