neobladder not working

That's very kind. Thanks for your reply and kind wishes.

Me too! Thanks so much for your reply and kind wishes.

Hi Perdita,I was wondering how you are and if they were able to repair the fissure ? Love Jane xx

Are you male or female xx i must say cannot imagine what you are going through xx

Hi there I was 2 days from going for reconstructive surgery on my neobladder in another hospital when I got a phone call to say that my recent MRI showed I now had cancer in my pelvis. It is terminal and they gave me 3-6 months as bone cancer is fast moving.. Not the best news. I feel that I could have been doing lots of things I'd always wanted to do while I was well if my neobladder had been sorted so it's upsetting that it didn't get it dealt with sooner. 

I'm so sad to hear that news. Hope you have as long as possible in a comfortable state. Very best wishes to you and your family.

So sad to hear your news. I do hope you manage to do things you have always wanted to do. Garviv

I’m so sad to hear your news Perdita.Thinking of you Love Jane xx

I hope, perhaps with help from Macmillan, you can achieve a satisfying amount of getting things done while you are able to. 

Hi Perdita, I'm so sorry to hear your news. Sending love and hugs to you and your family.

Ade xx ️