Hi all
Had my follow up meeting with the consultant/surgeon last evening. In summary I think it's about as good as I could expect with a 4cm tumour removal. Classified as Grade 2 - very largely low risk with occasional high risk spots and totally superficial pTA. I will be getting Mitomycin therapy starting in about 4 weeks or so for 6 weeks followed by rigid cytoscopy/biopsy under GA. Then 3 months later another round of chemo - to be repeated for probably about a year. My recovery from the 1st Turbt on 14th is going pretty well now that the ureteric stent and catheter were removed. I feel much calmer now there is a plan in place. Thank you all for your advice and support so far
Jane x
Bicyclegirl . Hi Jane. As you say, in the great scheme of things this sounds like a good result if there is such a thing. Looks like they have your future mapped out and they will be looking after you. You now have something positive to focus on. The follow up cystoscopy is usually a lot less severe than the first TURBT. Usually just some sample biopsies. Relax for a bit now. Best wishes.
Thank you Julia, taking it day by day as the good folks on the forum suggest.
Hi, forgot to ask how you have been since your scans in January?
Thank you for asking, I’ve not heard anything but then I’ve never had results until I’ve been to see a Doctor at the hospital, at the moment I have nothing booked in…. So hoping No news is good news. Been 10 wks since finishing treatment, so probably get an appointment in next few weeks.
Julia x
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