Diagnosis

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Just been diagnosed with bladder cancer. Apparently it’s non invasive, at an early stage and papillary. Which I think is sort of good news. I have had a cystoscopy, CT scan, and pre operation screening am am awaiting a date for the TURBUT procedure, hopefully to take place before Christmas or early in the New Year.

its been a bit of a shock to the system, for both me and my wife. But diagnosis and preparation for treatments has proceeded apace. It is however at the back of my mind the whole time, knowing into the back of my brain.

Of course I will not know if the cancer is high or low grade till the pathology work is done. I have no real idea what the prognosis is likely to be.

Any tips or info gratefully received.

  • Hello  and welcome to the group. You are in good company here as we know how you must be feeling and thinking at the moment. Firstly, be aware that bladder cancer can be treated successfully. The early days of uncertainty and not knowing can be the worst. once you have your TURBT and results you will then have a treatment plan which will give you something positive to focus on. A TURBT is fairly straightforward op in the great scheme of things. usually done in day surgery but prepare for an overnight. In the meantime it is important to keep drinking plenty of water to keep things flushed out. Lots of experience here and so usually someone with an answer to any questions. Best wishes.

    Best wishes to All,   rily.

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  • Thank you rily super helpful Leo

  • Hi Leo1,Welcome to this friendly group.I hope you will find it helpful and supportive.Best wishes Jane 

  • I went through the exact same thing starting in July of this year. The diagnosis and early days for me were devastating. I had my TURBT within 5 days of diagnosis by cystoscopy so I had little time to dread the procedure. You will be under anaesthesia during the TURBT but you will feel the invasiveness of it after the anaesthesia wears off with burning for a couple of days (rapidly improves by drinking much water). I did not feel completely back to normal afterward for 10-12 weeks. I found out four weeks after the procedure that my cancer was high grade which was devastation number 2. I have since had a number of treatments and am still recovering. Take everything a day at a time and try not to overreact at each stage (I was not very good at this). The diagnosis is life-changing but you can get past it. I am still trying to do so. Good luck, my friend and try to stay positive. Seek out as much support as you can, including here at this forum. There is no benefit to suffering in isolation.