New and just diagnosed

Hi KL13 and welcome to this friendly group. I am sure you will get lots of help and support here going forward. We know how anxious the early days of uncertainty and not knowing can be. A CT scan is standard just to check nothing else is going on elsewhere and gives them a better picture of what they are dealing with. Early days yet and it is unlikely they have forgotten you. There are many backlogs owing to strikes etc. The waiting can be very stressful. You could always ring the urology dept. to check you are on the list if you are worried but 6 days is not long at all. Usually a few weeks. A TURBT is a fairly straightforward procedure. Usually done in day surgery but prepare for an overnight. Biopsies will be taken and then further few weeks waiting for results. The results will then determine the next step. I hope all goes well. Best wishes.

Hi KL13,Welcome to the group.It is a stressful time waiting for tests but most people find they feel better once a treatment plan is in place.I hope you don’t have to wait too long and find it helpful here.Best wishes Jane

Hi Rily

Thanks for your reply.  Your info has made me feel much better.  

KL13

Hi Winkers60

Thanks for your reply.  Yes I think it’s the uncertainty and not having a treatment plan, aggravates the worry…

Hope this will all be clear soon

best wishes, KL13

Hi KL13,We have all been in your position and it’s not nice but hopefully you will have a clearer picture of what’s happening soon.There is plenty of support and advice here so feel free to ask any questions.There is usually someone with the relevant experience to answer.Best wishes Jane 

Hi,

Welcome to the group, where you will find a lot of support, so don't be affraid to ask questions, no matter how silly they may seem.  

Now, it's perfectly normal to have anxiety and I'm afraid it's par for course, but try not to let it take too much of a hold. The diagnosis is alwaya a shock and initially your first thoughts are dark. However, bladder cancer has a high rate of being treated successfully and I'm an example.

CT scans are normal and are usually over in about ten minutes. The TURBT is a minor op and depending on thett time of day you have the op you probably won't need to stay overnight. Once these steps are taken your Specialists will recommend the form your treatment will take.

On diagnosis you often want to get your treatment done asap, but it will take some time, so don't get distressed and try to avoid Dr Google. If you are concerned about the dates, try calling the Hospital, or if you've been allocated a Specialist Nurse try giving them a call.

It's still early days, but there is plenty of support here and I find the Online Nurses very helpful, but above all, don't br a stranger.

Hi KL13

I was diagnosed on 6th Jan 23.  I had a TURBT on the 21st Feb..

I was also worried when I hadn't heard anything after a few weeks

Wishing you all the best, love Tina X

Hi Ianw,

Can only  offer my gratitude for sharing your experiences…

Best wishes

KL13

Tina,

I hope I will get my Scan and TURBT completed within the 31 day timeframe

Thank you for sharing.  Reading your experience of what I’m currently under has bought so much relief

Bless you

KL13