Penis Shortening post bladder removal

Thank you very much Hornblower-really appreciated. Anxiety levels through the roof...motivation levels close to the floor ,have asked questions as per your reply ,to nurses...see what they say....I don't know If it's worth going private for a 2nd opinion...will have to rob a bank tho..haha...thanks again

Thanks Denby...totally agree...kind of makes me feel I am on a production line! Another thing which p****d me off yesterday was I got a short tel call from the stoma nurse - I thought to make an appointment on what to expect , how to use , clean etc , but no-they send a user guide and then I give them a call with any questions!!!! I mean come on! But she did finally and w/o enthusiasm agree to see me If I really needed to...jeez , I mean I am not going in for a minor op...just don't know...I know some / most people would jump at a 35% cure rate chance. Thanks again. 

Hi Pienmash 

My father in law is currently waiting for the same surgery as you are facing. He met with the stoma nurse last week, and she gave him leaflets but was next to useless about advice and actually gave some advice which wasn’t correct. 

I know it wasn’t correct as she was the same nurse I had when I had surgery 3 years ago when I had my bladder and rectum removed-so I have 2 stomas. Everyone’s stomas are different, and I learnt everything I needed to know from my stoma nurse in the community after I was discharged and a lot of trial and error! 

My chances were 30% but I still jumped at that and I’m not a gambling woman. But here I am more than 3 years on and never had any issues with my stomas.

Sarah xx

Oh that’s not good.I had to go over a few times to see the stoma nurses at the local hospital pre op.I got a good explanation of what the surgery would involve and watched a video of a lady changing her bag.On the last visit I was marked up for where the stoma would go.My sister was able to go to the first appointment and ask questions.I got all the care of stoma info from the stoma nurses where I had the op and then was referred back to the local team.I can contact them if there are any problems but I haven’t had any.There was an initial hitch with the stoma supplies and they kindly sent me some bags while things were getting sorted.Jane 

Thank you Sarah, very much appreciated and you give me hope...:)

Yes I know....I will insist on seeing them...but a little sensitivity would go a long way for me right now...and reassurance...my urology nurses are in the main excellent...thanks again! Thank god for the people on here!

My father in law is very positive about his surgery but he wasn’t given any other options due to other health conditions. Hopefully he will be having his op soon as he’s on the urgent list now. He wasn’t offered any treatment for his prostate cancer-just removal-as the bladder cancer is the priority in his case. 

Sarah xx

Absolutely and as you say it’s not minor surgery.I hope you can get a good meeting with them beforehand it’s really not good enough to send you a leaflet and have you do all the follow up.Love Jane 

Hi Pienmash, I think I must have been lucky with the surgeon that did my radical cystoprostatectomy, he saved as much of the blood vessels and nerves as he could, my local GP was also very good and we tried the Viagra and Cialis, Viagra didn't improve the erectile function and gave me a headache afterwards, Cialis had no effect either but gave me a nose bleed that lasted an hour, GP referred me to the ED clinic and I was given a vacuum device which works well, yes there is some shortening but the vacuum device has helped with that.

1807truckman

 Pienmash  Crikey no one mentioned the shrinkage effect on the penis to me, and I have my RC in just over a week. It never rains but it pours. The consultant did say that errections would not be possible, or not without help. It’s quite a big deal for me, however if the RC saves my life, and extends it, I just have to be philosophical I suppose. Bu55er.