Recurrence. G3pT1

Hi deb

I had the same worry S such 2020 diagnosis 7 cm that.removed it reaccured in 2021 had lazor to remove small growth then had chemo flush and atm having 3 monthly checks 

My 1st one is 22nd of this month and i am Nervous too it's the not knowing

Hi Deb just to say welcome to this friendly supportive group. Personally I would take the GP with a slight pinch of salt -she's a general practitioner after all  not a urologist or gynaecologist  unless one of those is an 'area of expertise' for her. 

Again , if I were you, I'd call the hospital team and ask if they can advise or get you in for a check to ease your mind.

Keep us posted, 

Denby

Hi Denby, 

Thanks for your reply.

The gp was my last resort. Ive already left messages for my CNS and spoken to consultants secretary.. no answers from them.I sent a letter to my consultant  and again  no reply. Im waiting on results for a urine sample. Im more concerned that this isnt being treated to try and slow it down or kill it altogether. My last ray of hope is that theyre waiting to see how fast it comes back. My gp has sent a letter to the team(i hope its the correct team) to ask about bcg. The worry and the anxiety level is awful.

Best wishes

Deb

Hi Hunni, 

Thanks for your reply,

I know  its excruciating. The communication level seems none existent Cant get answers from anyone. It wouldnt be so bad, if they gave an idea of a treatment plan.. even if its just to confirm how they are intending to proceed from TURBT onwards.would be a help. But no...nothing..i'll just have to wait for results and hopefully a reply to gps letter.

Best wishes & good luck for 22nd

Deb

Hi Deb,I hope you get some answers soon.The communication leaves a lot to be desired in the nhs especially since the pandemic.Love Jane x

Hi Hunni,Welcome to the group.I hope it all goes well on the 22nd.Love Jane x

Might be worth contacting the PALS dept of your hosp. In my experience (as a hosp clinician), once they get involved, you will be handled with kid gloves to ensure all is done correctly & to your satisfaction. There might be some good reason why BCG wasn't recommended, but the medics should have discussed your treatment plan with you. Best wishes.

Ah bless u nd I had to actually ring hospital for app czbits been over 4 month nd they said 3 month check but will let u know hun wot happens thankyou and u also  take care dnt worry xx

Thankyou  so much Jane xx

Hi, thanks for your reply.

I've spoken to pals before at my hospital.(Not about this issue), but got nowhere. It seems there's alot that sbould've been discussed that hasn't. I've never had a discussion about treatment other than at my initial 6wk post turbt. Consultant told me the grade of cancer and that a 2nd look was necessary and that he would probably treat with bcg and told me how its given etc etc. My next cystoscopy is due in June so that will happen around december unless i call them. I can only hope, that now the gp has written re new symtoms, they might  do it earlier. If i dont hear anything, ill go to PALS.