Hi there my lovely 87 Yr old father had a diagnosis of a cluster of bc yesterday Consultant and nurses were so kind, showed me photos said 1cm and caught early & not spread ( how does dr know as he hasn’t had his CT scans yet) . All seemed pretty played down. My father is extremly private so an ordeal for him. I don’t know ur terminology here you all use. He has a op date early March. From what I think I heard ( as we were in shock plus flipping surgical masks make it so hard to hear) he will have this shaving the bladder/ removal of the tumours with maybe 6wks of treatment & await biopsy result. . I asked if it was chemo? I didn’t understand the answer but thought he said no it’s not chemo/ radiotherapy. We have to go back for his pre assess appt. He has CT abdo pelvis urinary tract etc nxt wk. under contrast. He has such bad urinary frequency up to 20x /day. He has urgency and dosent always make it to the loo. So upsetting for him. My mother has to get up in night sometimes. This is worrying as we don’t know why, if prostrate is involved? How will we know. I asked the consultant and he said he didn’t know the reason for this. Poor daddy he was gardening last sumner but in 6 mths has become very washed out .this is not him. Is that the bc making him weak? The road here was slow the GP just kept giving him antibiotics and different meds for frequency but 1 caused blood in urine so dads not on anything for frequency now so it’s pretty grim trying to get him to drink as he doesn't want even more trips to the loo.I explained it dosent work like that. Will dad have chemo is this called BCG or Mytomycin? Isn’t BCG the anti TB vaccine? I just hope he is strong enough for all this my poor lovely daddy. Will he get a hospital specialist nurse? Will the chemo make him unwell at 87? Is this a long road, from what I read and tge Nurse yesterday said “ we will be seeing a lot of them” my father literally reads all day wants a simple life , this is very hard for him. I love him so much xx
Hi Dream5 and welcome to the group, although sorry to hear your father has been diagnosed with bladder cancer. Many of us have been there and it can be treated successfully. We also know how it can have an impact on family and loved ones. The operation your father will have is usually a TURBT (trans urethral resection of bladder tumour). Usually a straightforward procedure. The offending cells will be scraped away and biopsies sent off for analysis. The biopsies will determine a stage and grade and this then will determine the next step. A CT can will check there is nothing else going on and will add to the overall picture. It is not until results are in, you will know the treatment plan. Try and stay away from Google as there is a lot of out of date and misinformation out there. Macmillan have a page on treatment if you click HERE . Feel free to ask any questions, lots of experience here. Best wishes.
Dear Dream5, may I suggest you and your Mother should both sign up with your local carers' Association? The support they give varies from area to area but it is worth doing. You may well get some support for yourselves this way, which will help you both to cope with all this. There is also a carers' group on here. And you can talk to the Macmillan helpline.
And if it is any comfort, though everybody is different, my husband had a whole bladder-full of tumours five years ago. but after TURBTs, some BCG [you are right, same thing as against TB, but works well against bc for many people] and some Mitomycin [into the bladder, for which the medical term is 'intra-vesical], he has been clear for several years. Not as old as your Dad but 78 now.
Kind regards, Denby
Hi Dream5,Welcome to the group.I’m sorry your father has bladder cancer.It is important for him to drink plenty as not drinking enough can make the bladder more irritated which can result in frequency.The frequency may improve once the tumours are removed.Some people do feel very tired and washed out.Let us know how your father gets on,we are all here for advice and support.Love Jane
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