I just wanted to post some good news. After 2 turbts and a T1 G3 diagnosis in July I was offered a choice of bcg or cystectomy. Finished the first set of bcg, 6 weeks of weekly treatment on December 14th, first cystoscopy under ga on 27th jan.
They found a growth and we’ve spent the time since preparing to be told the treatment is done, time for a radical cystectomy. Today I had the call that the growth was low grade and superficial, the original cancer hasn’t progressed and I can continue with the bcg, treatments every 4 weeks and another cystoscopy after that.
So relieved, pleased to be able to give my 19 and 16 year old kids some good news after 8 months of ‘bad news’, we can plan again and may get a summer holiday.
My journey continues but I’m really grateful for this hurdle to be done and will continue to be positive (as much as I can!) and, corny as it sounds, continue to be grateful for the little things that I used to not notice.
hoping that this gives others going through the same treatment some comfort, although I must admit, my default mode is expect the worst and anything other is a bonus.
Family meal out as a celebration tonight, we’ll see what the next few weeks brings.
Good news catlady101 . Good news always gives hope to others. Wishing you well going forward. I hope the meal goes well with your family. Best wishes.
It is great to hear some positive and good news and hearing the BCG is working is wonderful news
I wish you all the best going forward
Book that holiday and have a wonderful time
Much love Tina X
This is the best news and enjoy that celebration meal, it does give me hope and I really hope that I may have news eventually like that once my turn comes xx
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