Biopsy results - in person consultation

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My partner had a TURBT for a recurrence two weeks ago. The consensus was that it looks small and low grade. I am worried now as hospital have booked a face to face appointment next week. It's not  with his usual consultant (he has spoken to this consultant by phone before for pnegative prostate biopsy results). The lady that booked it said not to assume the worst as it was put through as urgent and all urgent biopsies have to be discussed with patient. I just wonder if anyone has any experience about whether face to face means bad news. It's so difficult waiting - I suppose I thought he would get a letter but perhaps there is a need for discussion even if it is low grade? 

  • Hi  . It is always difficult not to overthink these unexpected appointments. Prior to Covid, nearly all consultations were face to face so it may be they are just getting back to normal. Whatever the result, it is always better to be able to discuss things and ask questions in person. Again, prior to Covid, it was not unusual to see different doctors rather than your consultant. I hope all goes well. Best wishes.

    Best wishes to All,   rily.

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  • Thanks Rily - I know I am overthinking.  The consultant said he didn't give bad news by phone any more so it has made me more anxious. The consultant he is seeing was good on the phone when he had the prostate biopsy results so at least we know he is pleasant to talk to. 

  • I do agree with Riley about the over thinking thing, however thinking about it is a good thing . Put together a concise list of the things you don’t understand , then research  those questions on reliable research sites so you get a real feel for what you don’t know. Take the list in with you and don’t let him/ her up out of the the chair until you are satisfied that you have the whole picture.

  • Thanks Orillia - good advice. I feel a bit confused to go from 'it's a very minor setback, low grade, I would have diathermied it during the cystoscopy but it's in a tricky place' to urgent biopsy and a face to face meeting with urologist. Face to face is good, I just worry about why. 

  • Not sure what the protocol is in GB but here in Canada after a recurrence the urologist will inform the patient that a possible treatment that wouldn’t necessarily have discussed in detail with a low grade, low stage first diagnosis, the option of bladder removal. It is doubtful that that conversation would happen over the phone due to the “ radical” nature of the treatment. It wouldn’t necessarily mean that the second diagnosis was more invasive or higher grade than the first but they are bound to deliver the explanation at that point if they are responsible and thorough.

  • Hi Orillia, the first diagnosis was high grade and the cystetomy discussion took place. I guess if the recurrence is low grade, he could carry on with surveillance. The meeting has made me think it may be high grade and there will be further discussion about cystectomy. I am just worrying about the unknown I suppose. 

  • Because there are options anyway, it sounds positive to me, to be able to discuss in person and ask lots of questions. They may have different recommendations, want to check what your partner wants to do etc. We always seem to worry & fear the worst - it's like practice 'just in case'. Hope you get good news.