Not the news we were expecting

Hi pixie27. Not what you hoped for but still not the end of the world. Muscle invasive can be treated. Are you sure it is not six weeks chemo rather than months? I was T3 and still have my bladder several years later. I had radiotherapy, but many here live without their bladders. When chemo is finished, they will check with more scans to see what has changed and take it from there. Best wishes.

I’m so sorry this was not the news you were expecting.It will be a shock but we are all here for you both.There are people here who know all about chemotherapy.There are a few of us who have gone through cystectomy and are leading full lives.Best wishes Jane

I’m sure it was 6 months, they said one week of chemo a month for 6 months. Then cystectomy. 

Thank you. X

Hi pixie. My chemo (Gem/Cis) was once a week for six weeks. Best wishes.

Thank you, I will check again if it is 6 weeks ?

How was it with the chemo? How it affect you? My husband is really scared 

Hi again pixie. I had 6 weeks of chemo. Long day one week and half day the following. Didn't have any problems with it and never sick, although we know some people have some side effects. You cannot predict how people will manage it. Best wishes.

That’s good to hear as my husband is scared of having the chemo but absolutely knows he must have it, did you do one week a month of chemo days? We were told 6 months in total, with one week on chemo and three weeks off each month? 

I had 4 chemos every month for three months. Honestly please don’t worry too much. Everyone has their own side effects but for me it was not as bad as I thought it would be, positive thoughts (although hard at times, I know). I wasn’t sick once just tired and a bit lethargic. It’s doing the job it’s meant to do. I wish you well.