Scanxiety

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I haven’t been on here for a very long time. I finished my chemo radiation on the 3rd January and I’ve been making the most of the quiet time with no tests or treatments. But Friday is looming and I have my first cystoscopy and I can’t deny I’m nervous. 
I don’t know what the expect, although obviously I’ve had one before when my cancer was first identified but other than my oncologist saying it will look very red, I wonder if they will tell me straight away if anything looks suspect. 
I have a phone consultation with my urologist on the 19th May, presumably to discuss the results, but that seems a long way off. 
My full CT scan was originally booked for 4th July (apparently they now wait 6 months after treatment for that. But mine has been brought forward to 11th May, as I developed a persistent cough and the GP sent me for an X-ray and they found a shadow. 
I don’t see my oncologist to discuss or find out the results of that until 9th June, but needless to say I’m not feeling very confident. 
I feel fine though and up until now I’ve considered myself cured until someone tells me different- but someone could tell me different very soon and the thought of more shocks, more bad news, more treatment, well it just makes me want to cry. 
just thought I’d get that off my chest - and wish me luck for the 6th, and the 11th and the 19th and the 9th June. Guess it’s time to get back on the rollercoaster. 
best wishes to you all - Linda

  • Good lucky I’ve just started chemotherapy last Wednesday next 1 on the 11th of may.

    stay strong

    stay positive 

    we both can do this ThumbsupHeart

  • Good luck to you too x

  • Hi . Coincidently, I finished my RT in the January, but that was Jan 2014. Various scans and cystoscopies,  and then waited till the May for results. I know how anxious that waiting can be. Best wishes.

    Best wishes to All,   rily.

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  • Thanks rily. Can you remember whether they tell you at the cystoscopy whether everything looks as it should or if there’s anything to be concerned about?

    regards Linda

  • Hi Stritty. My cysto was under GA . In and out in couple of hours. Didn't see doc before discharge. If you are having a flexi, then they should be able to tell you something. Got letter a week or so later, just describing the op, but non committal. Just red area and sample biopsies taken. Further scans and long wait to get results. Lots of frustrating waiting but good result in the end. Best wishes.

    Best wishes to All,   rily.

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  • Good luck Stritty,I was told what they found at cystoscopy flexi and after a local anaesthetic.Love and best wishes Jane x

  • I have had quite a few scans and you always get a certain amount of anxiety despite how many times you have them. I usually get it the day before the results. Now getting onto your case, most CT scan results are usually available within 10 days and if the radiologist see' s anything untoward they will flag it up the line ASAP.  In short, don't worry about the gap between the scan date and your oncologist consult, if you need to be seen earlier, the likelihood is you will. Your med team are just covering all bases.

    Best wishes 

    It doesn't matter where you go, there you are
  • A great post Stritty. 

    Sounds like all your anxieties/worries/fears were brought out there. That is exactly what this forum is about. 

    I'll bet you feel a little better for releasing all that 'scanxiety' (great word by the way).

    It's good to express your fears and worries. And we don't always get the chance to do that with friends/family. I find myself, in conversation about my cancer, proecting whoever i'm telling or talking to. When really i want to let people know how scared i am at that moment. This forum comes up trumps for me there. There is no one to butt in and tell you to 'look on the bright side'.

    The best understanding i've had so far is from people on here that have been through something similar. And it helps. It helps me massively. It's also nice to now that in sharing my experience or feelings others may be relating to it and maybe getting a little comfort in the knowledge that the are not alone in facing such difficulties.

    Best of luck. Keep sharing.....Del.