Hi All
Well I had my consultant meeting and my oncologist nurse yesterday.
Up shot is he said I had a Putin bladder mad n crazy but although I will no longer continue BCG after 21 treatments I was given the option to keep my bladder.
Camera x 3 monthly, I’ll be booked for a CT scan for any other issues outside.
He said although the bladder is frail I can continue having turbt if occurrences happen.
However the BCG has lowered the grade and the tumour that was removed Feb has put me in the low risk position unless I get a rush and have multiple tumours at the same time!!
I was surprised as I’d been told to prepare to have RC so had done my home work and had made my decision from the kind experiences shared from everyone.
Thank you all from my heart,
I also will be starting the Hope online course next week so I can improve my journey with a new outlook.
Much love
Lorraine Gizie Cat x
That is fantastic news and I am so pleased for you
Love Inanna
Hi Inanna
yes complete turn around from the first impressions given, still he did agree the madness of my occurrences will eventually mean RC but for now dance dance with my best friend Maddy 
Stay well and happy
much Love
Lorraine
x
Hi there Piennash
How are you going ?
Well Sept 2017 High Risk NMIBC( G2 pT1 TCC
Deep biopsy which showed cancer cells that was then repeated after the mitomycin which was clear the area taken.
Had 6 x Mitomycin Dec 2017
Recurrence x 5 papillary with x2 CIS Jan 2019. G2 pTa TCC
Started BCG Feb 2019 x 6 then after continued on maintenance program care plan for 3 years.
June 2020 2 more occurrences grade same
November 2020 2 more papillary grade stayed the same.
July 2021 small undetermined same grade
Feb 2022 1 papillary 1.1cm on the dome by all accounts a safer place so this has lowered the risk and the need for surgery at this point in time.
I will continue flexible cystoscope x 3 monthly ongoing.
I wish you well much love
Lorraine x
Keep dancing as long as you can, Lorraine-very good news for you!
Sarah xx
Hi Sarah
Thank you I’ll dance away till the next time in May and with luck the camera will be clear 
Stay well
much love
Lorraine x
Fingers crossed Lorraine. I currently have my little black cat, identical to your avatar, lying on me in bed trying to stop me typing! She prefers me to be stroking her. 
Sarah xx
