Bladder cancer surgery

Welcome to the group.I had my bladder removed at Southmead hospital in Bristol.They are a centre of excellence for urology.Best wishes Jane

Hi KDarby and a welcome from me too. Can I ask, are you currently with the NHS as these ops are usually done fairly efficiently. Best wishes.

Hi, yes I am currently receiving treatment on the NHS but as I’ve progressed from stage 3 to 4 the doors on surgery seem to be closing  

despite stage 4 I am very minimally diseased and my latest scan in Jan showed a reduction so i feel I don’t have a choice but to try and find someone myself to operate 

I am 41 years old and apart from 2 cms of cancer i am very fit and well 

Thank you for your reply - I am compiling a list 

Whereabouts in the country are you? No point in suggesting someone miles away. Also worth looking up BAUS female bladder cancer specialist. 

Thank you 

I’m near Manchester but would be willing to travel anywhere 

You would be best to choose someone near to home - you don't want to be making long journeys after RC. Probably can't go far wrong with Manchester Uni teaching hosp or the Christie. 

Mr W was diagnosed 5and a half years ago and treated  successfully with bcg However he has had recurrent utis since September which our Gp has treated unsuccessfully with antibiotics Unable to get anything other than telephone appointments we decided a couple if weeks ago enough was enough and made an appt with Mr Mohee at the Alexandra hospital in Cheadle After an excellent 35 minute face to face appointment Mr W had full blood and urine tests is having a full ct scan tomorrow and then a flexiscope If it comes to Mr W needing RC Mr Mohee will be able to do robotic surgery At the moment we dont know Mr W passed a kidney stone a few weeks ago and blood tests show his kidney filtration is impaired which needs investigation His losartan for high blood pressure has been stopped as it can affect the kidneys We were very impressed with Mr Mohee You can see his profile on the Alex and the Highfield pages along with several other urologists

Best wishes

Wilbert

Thank you for your reply 

I’ll make a note of names 

wishing Mr W all the very best