I've had a partial report from my gp who gets letters by email, whereas I get them by post.
My tumour is muscle invasive, which as far as I am aware means radiotherapy followed by removal.
I'm waiting for my letter to read the grading. The gp told me, but I didn't take it all in. I understand the whole urology team make treatment recommendations, not just my consultant. So I won't get that for a while.
I'm currently not too great as I have an infection from the TURBT.
Hi Coojee. Sorry to hear your news was not as you hoped, but still not the end of the world. Treatment for muscle invasive is generally removal or radiotherapy. You will find out a lot more when you see your consultant. Your case will be discussed by the multi disciplinary team and will come back with recommendations. Many here have had either treatments and will be able to answer any questions. I hope your infection clears up soon. Best wishes.
Thank you for your reply.
This morning my gp called as they had a further letter about my treatment program. This is for chemotherapy, followed by bladder removal. I do not know the reason for the chemotherapy instead of radiotherapy, which I thought was the standard procedure, unless they feel it has spread. My emails to urology go unanswered.
Good Morning Coojee. Chemo is fairly standard in helping to slow down or reduce any growths. It helps with future treatments. Also helps to deal with any rogue cells elsewhere. I had six weeks chemo, which wasn't too bad. This halted the growth. I then had to make a choice of bladder removal or radiotherapy. I chose radiotherapy and still have my bladder. Unusual for information to come from your GP rather than your consultant. my GP was never involved. When you go for chemo, you should meet an oncologist who will be able to give you more detailed info. Best wishes.
Hi Coojee. I drove myself to all chemo appointments with no problems. Difficult to predict how people react to the treatment as we are all different. If unsure, maybe an idea if you can get someone to take you to the first one to see how you go. Best wishes.
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