Travel after TURBT

  • 11 replies
  • 65 subscribers
  • 2119 views

Thank you everyone for your help & advice so far.

I have my TURBT 9th August. I live in the Scottish Highlands, a good 60 miles from the hospital. My wife cannot drive.

I can probably make it to the hospital with a combination of a 3 mile walk from my house to the train station, for the first time I've been on a train since lockdown, followed by a bus ride to the hospital. What condition am I going to be in after the op? Will I be able to make that trip in reverse, or if I drove to the hospital, woudl I be in a condition to drive 60 miles back home?

Thank you.

  • Hi . Driving after a TURBT is certainly not advised. You will still have anaesthetic in your system and in some cases morphine. You may also have pain in the area which would make it difficult driving. You will also need to make toilet trips on the way home. Have you explored the possibility of patient transport? In the NW, we have this free service. I was never allowed out until someone came to collect me. Best wishes.

    Best wishes to All,   rily.

    Community Champion Badge

    What is a Community Champion ?

  • Thank you Rily.

    I was expecting that to be the case, probably pressing the clutch or brake pedals would be next to impossible. We do have a patient tranfser system but they are very busy indeed. I am not sure how I book a trip back home, as I don't know the discharge date & time. I will make contact with them & ask. I am assuming that they will not take me to hospital as I would not have a clinical need, so it's probably the walk/train/bus option.

  • Hi , I was tagged into your post.

    I live in Inverness so you may want to call the Maggie's Centre to see if they can give you some information on 01463 706306 Monday to Friday, 9am to 5pm.

    You should also talk with hospital clinical teams as they can look at arranging hospital transport.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thank you

    I've been referred to the local Mac nurse - & also a Mac team at Raigmore. They also mentioned Maggie's centre, I'm not sure what they do. For transport, the Urology Nurse told me to contact my GP who told me it's now run from Patient Transfer, an 0300 number which is premium rate to my tariff. I spent 45 mins on hold this morning before I gave up.

    Despite having to walk 3 miles to the nearest train station/bus stop & expect I am considered clinically capable of making the trip to Raigmore with a mix of walking, train & bus. A taxi would be about £120. My concern is how do I get home.If this is by patient transfer, how would I book this as I don't know the time or even day of discharge.

    I will ring Maggies to see if they can help. Thank you.

  • Unfortunately, Maggie's couldn't really help.

  • Try this number and email.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Just one point. 0300 numbers are not premium rate. It will be the same rate as normal landline 01 & 02 numbers

    Martyn. 
  • Thank you, but I can assure you that on my tariff, an 0300 is premium rate. It's an IP phone.

  • Thank you Mike.

    The number I have spoken to before, it is the accounts for patient transport where you can claim for travel costs. I had another chat with a lady there & although they could in special circumstances at least provide a taxi from my home to the nearest train/bus stop, there was no fix at all for my regular toilet breaks on the way out & nothing to help travelling post op on the way back home. Also no chance of a taxi all the way. The separate patient transfer dept is still proving difficult to reach.

  • That's strange because the law changed in 2015 and mandated that 0300 calls must cost the same as standard calls.

    Martyn.