I had my bladder removed in October and i am trying to get over that and a recent scan says i have secondary cancer now in lymph nodes and in my lungs i start chemo on thursday i have a great family, carer and friends but they are all hurting so much i cant talk to much for i may upset them they are all really amazing but i normally make everything right in there lives but i cant put this right but they cant do enough for me and my grown up children are at breaking point they are devastated so i carry on glass half full but this time i don't have any answers, it has helped just writing this down thank you gibby
Hi Gabbygip, what rotten news for you and your family to deal with. Glad you have family caring and supporting at this hard time. I can hear that you have invested all your energy and love to your children and now they are adults it is their turn to give back to you and I'm sure they will be keen to be there for you. It was definitely what I wanted to do when my lovely parents got older and had health issues, Naturally you may want to protect them from your darkest fears but we are all here listening, and we have shared many of those fears in our own situations. Keep in touch. Sending you lots of love. Hx
This must be a fresh down point for you at a time when you are recovering from major surgery. It is time to look after yourself, despite the inevitable emotional toll of not wanting to hurt your loved ones. They may need support & counselling from an outside source in order to help support you. Feel free to come and unburden yourself here. Very best wishes for you at such a difficult time.
Hello Gabbygip
That's a proper blow after having surgery. I hope the chemo has the desired effect. While you're having that, it may be worth mentioning immunotherapy treatment as well to your oncologist. A friend of mine had bladder cancer spread to her bones, lungs and liver and has had a good outcome after treatment with Atezolizumab.
I wish you good fortune.
CB
I may appear to be listening but in my head I'm all at sea.
Really hoping for a good outcome for you thinking of you xx
chrissy
Hi, I would be very interested in any more inf ormation about immunotherapy. My husband's bladder cancer has spread to his pelvic bones. We have been told it is incurable with a prognosis if 1-2 years with chemo, immunotherapy and possibly some radiotherapy.
We are devastated find this out when we thought it was just to get a date for bladder removal after 3 cycles of chemo to get that extra 5%.
Was that an error, did the cancer escape during the chemo? It makes no matter now.
How is immunotherapy? How is life quality from here on in?
Many thanks
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007