Hi, my name is Sally. I am 52, a mum and a nana. I have the misfortune of a rare terminal cancer diagnosis. I was sent to A&E on the 17th Oct and diagnosed on the 06/11 with bile duct cancer which has spread to the peritoneum and gallbladder. I found out this week the tumours I have are not the right mutation for any clinical trials and I am to carry on with palliative chemotherapy and immunotherapy, which the side effects are awful. I am beside myself with guilt more than anything. I feel responsible and I feel I've let my family down. I feel weak and have always been a strong minded individual. Cancer is stealing my life little by little every day slowly but surely and it's showing! I have awful constipation and the pain from that is worse than any cancer pain. I can't take morphine/codeine because of the problem I have with my bowels. The tumours are very close to the bowel so maybe causing a blockage, I don't know. I am desperately trying to get in touch with a counsellor but this Christmas period has been very long. I am not sleeping nearly enough even though I'm on some heavy sleep aids. I find it impossible to sleep during the day. Would anyone know how I would go about getting help from a counsellor or professional in this field? Many thanks, Sally
Hi Sally,
I am so sorry you have been diagnosed with this cancer, it’s no wonder you are struggling & I expect trying to put on a brave face for your close family. It sounds like you are being treated at a specialist hospital as they have looked for mutations. Do you have an allocated cancer nurse who you can chat to about arranging some counselling? And perhaps the Macmillan help line could support you? Your doctor’s surgery may offer someone or point you in the right direction.
Have you looked at the AMMF website which offers lots of information. They advocate getting a second opinion if you are not being treated at a specialist hospital. They also have a very kind & supportive Facebook page where you might find others in a similar situation who can give some advice with your symptoms.
Please don’t feel you are letting anyone down… I hope you soon find someone to help you xx
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