Hi all,
I'm caring for my mum who has a large tumour in her liver, we've been told it started in the bile duct. At her last scan before chemo started it was 17. 5cmx8cm. She has her last "big/long treatment of chemo & immunotherapy tmoro then a scan on 22nd Sept. She has type 2 diabetes,& it has been a struggle for her. She has had a blood transfusion, then a week later a magnesium infusion, I fear which was depleted after all the meds they've given her for fluid retention. I live just 20 doors away from her,so within 2mins I'm at hers.I visit 2 to 3 times a day, & take meals which I've cooked for her. She is very weak & shaky,no strength in her legs hence using a 3 wheel walker. I'm so tired worrying about her & hoping the scan will show some stabilisation of the tumour,& it's stopped growing or hopefully shrunk. I would like her to have a drain as her tummy is so big & base of abdomen is sore.,& she is so uncomfortable, we've lowered her bed so she can get in&out of bed easier,(they're very swollen & her ankles)
Every morning I wake up with that horrible big knot of dread in my tummy,I don't know what day it is sometimes, it's just a massive black cloud hanging over me,& at the centre of it all is my dear mum who I adore. I'm doing everything I can to help her. I have a little cry now & again,but I feel numb as well I'm just "going through the motions" day after day,wishing this was all a bad dream & we're going to wake up soon.ive been with her for every chemo session.
I just hope the scan on Monday, will have made some difference.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
I'm sorry to read how much you and your mum are struggling at the moment. If you are at all worried about her then please give her hospital team a call or, if you can't reach them, phone NHS111 for advice.
While you're waiting for replies, it would be great if you could put something about your mum's diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Sending virtual ((hugs)) to you both
"Never regret a day in your life, good days give you happiness, bad days give you experience"
