Hello,
My mom was diagnosed with intrapathetic cholangeocarcinoma 1 month ago on October 31st. She’s 73 years old and it was an incidental finding. Her liver enzymes were high. They were Not off the chart, but elevated. A follow up ultrasound, CT & MRI showed a single mass of 2.6 x 2.6cm in the liver (right lobe) nothing else in lymph nodes or gallbladder or anywhere. Only other lab that was off was her CEA was at 57. She’s crazy healthy. She has NO other health issues. She’s not jaundice, no pain. She rides her peloton daily, walks and does Pilates. She previously was a runner and even qualified ran Boston. She’s never been a big drinker and has never smoked. She’s never been overweight. Her only current symptom is that food doesn’t taste that good sometimes, and she’s rarely hungry although she is still eating normal amounts. She makes herself eat. Anyway they went in for resection as she looked like the perfect surgical candidate. Unfortunately when they did the lapoproscpy prior to resection, they found 2 tiny tiny lesions they tested and were positive. The cancer had metastasized and surgery was aborted. We haven’t met with an oncologist yet. I don’t know what her markers are or what liver biopsy showed. She’s not sure she wants chemo as she wants quality over quantity of life. We are aware this is not curable but do we have any options? What kind of timeline do we likely have? When will she start going downhill and be unable to travel to Hawaii with Grandkids? Weeks? Months? Could we have another summer? I’m so lost and devastated and so many questions. Please help if you can and thank you in advance!
