Cholangiacarcinoma palliative care

6 replies
23 subscribers
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Hi, I've just joined this forum after being diagnosed in Oct 21 with terminal cholangiacarcinoma.

I had no real symptoms.. Slight stich in right side with 2 days vomiting prompted me to visit gp.

5 long weeks in hospital before discharged for end of life care.. I'm 54.

Fortunately I was offered a place on the palliative cisplatin /Nuc-1031 chemo trial to hopefully add an extra few months. Its tough going but I'm fighting. I get my post 3rd cycle scan on Monday 31 Jan. Hoping to see slow down of progression and spread.

Thanks for reading x

Linny over 2 years ago

Fingers crossed for you xx

Jct13 over 2 years ago in reply to Linny

Thank you x

Liliac over 2 years ago

Thinking on you and in my prayers!

1996 over 2 years ago

Hi, how are you doing, I’m thinking of you. Love Louise xxxxx

Lils36 over 2 years ago

I’m so sorry to hear x

Jig over 2 years ago

Similar story. Diagnosed June 21 stage IV inoperable. Began ABC-07 trial. Had chemo then randomised to have SBRT radiotherapy. Although had tired periods I didn’t feel ill. Now I feel the same as I did when first diagnosed. So now just living life to the full if I want to do something I do it. Can’t get travel insurance but been abroad 3 times since lock down ended without incident or accident

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Cholangiacarcinoma palliative care