Bile duct cancer

  • 3 replies
  • 19 subscribers
  • 1296 views

Hi I've just been diagnosed with bile duct cancer and feel so scared about what happens next

  • Hi   I’d like to offer you a warm welcome to the Macmillan Online Community. I’m sorry to read about your diagnosis but you’ve come to the right place to talk to other people who are in the same situation and able to help you get through this.

    My cancer is different, but a cancer diagnosis of any kind makes us ask lots of questions, causes confusion, stress and probably emotions we’ve never experienced before.

    The Macmillan Community is organised into dedicated support hubs. You’ve joined our Bile Duct cancer group, this will be a good place to connect with others making the (support of a family member on the) same type of cancer journey.

    It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. 

    The Macmillan Support Services also offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two to three working days for replies from our expert team.

    Sending you welcoming hugs B xx


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • Hi thank you so much for replying I dont know how to feel at the moment just really scared what the future holds

  • Hello Samimara.

    I am so sorry to hear of your diagnosis.  It will take a while to sink in.  My husband had this diagnosis last November and the treatment journey continues.  Do keep posting and anything I can help with I will. I have taken a policy of asking the medical team lots of questions and asking them to explain another way if I don’t understand.  I thus feel a bit more in control of what is going on.  The other top tip is to try to eat and stay active which is the part you have control over since all the technical and medical is out of your hands.  My husband had a stent fitted which eased his eating problems - maybe this will be an option for you.  Sending you my best wishes.  JaneyC