Hello, I have recently found out my prognosis and I am looking for any advice. I have lost my confidence, don’t want to go outside my living room, I don’t have an appetite. I am trying to stay positive but only find out this Thursday if I can have palliative chemotherapy. Which might give me 5 months.
Hi and a very warm welcome to the online community
I don't have any experience with bile duct cancer but I noticed that your post had gone unanswered.
It's not surprising that you have lost confidence after being told your prognosis and I'm hoping that you have had some positive news from your meeting with your cancer team today.
You might find it helpful to have a chat with one of the nurses on the Macmillan Support Line. You can call them free of charge on 0808 808 0000 anytime between 8am and 8pm everyday. They are available to give advice on a range of topics or can simply listen if you just want to talk.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
Oh, I'm really sorry to hear that you can't have chemotherapy but I'm glad to hear that there are still things you're planning to do.
You might like to join the living with incurable cancer group where you can discuss all sorts of things including making the most of your life. It's a group specifically for people with an incurable or terminal diagnosis and if you'd like to join just click on the link I've created.
All the best
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Alison
It's great that you have been able to point Darwin123 towards AMMF. You will see from my post that I said that "I don't have any experience with bile duct cancer" so I didn't have any knowledge of this group.
As a Community Champion I'm a volunteer who found the Community to be a great place for support when I was diagnosed with melanoma and wanted to give something back to the Community members. The groups that I am Champion for are the skin cancer and the melanoma groups.
My role as a CC, besides looking after the members of the skin cancer and melanoma groups, is to welcome new members and help existing members by suggesting different groups that are available for them to join or signposting them to other areas of the site, eg ask a nurse, etc. This role includes replying to posts that have gone unanswered such as Darwin123's post.
Unfortunately, the bile duct cancer group doesn't have a Community Champion yet and Macmillan are always looking for people who would be prepared to volunteer their time as a CC. If this is something that you would be interested in doing please click on this link.
Thank you once again for responding to Darwin 123.
Regards
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
