Newly Diagnosed

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Good Morning Everyone

Just wanted to say hello! I was diagnosed on 11/11 having been fast-tracked by GP on 16/10. Have to say the NHS has been fabulous but I have pushed and badgered too having been diagnosed with a pile in June I knew something wasn't right

I've had CT, MRI, PET scan, sigmoidoscopy and have an upcoming colonoscopy this next week and my first specialist appointment this week too.

I'm 53 and a single Mum to a precious 15 year old girl.

I'm experiencing discomfort and the CNS has prescribed co-codamol already however I am trying to limit this for now.

I'm off work already too as I work in retail and standing for too long is uncomfortable and well having to deal with the general public and put my game face on is just too difficult for me.

Quite honestly I'm scared but I also have a fire inside me that although dims at times has never gone out

Ian L c2e27 5 hours ago

Hello and welcome.

Im sure that you are going through a whole host of emotions atm but you have come to the right place as everyone on here will have gone through or going through what you are and there is so much advice that can be offered.

I have just finished chemradiatiin about four weeks ago and already I feel great. I still get a a little tired but I've recovered well overall.

Had chemo tablets and radio five days a week and for me the worst park for me for nausea, hospitals parking each day and the skin damage towards the end. That said it was bearable and doable and now my skin has completely healed.

Once you start treatment all will be good

Take care for now x

Irene75359 5 hours ago

Hello Beckym16798147d

We will all do our utmost to make sure that fire keeps burning brightly Becky! I am so sorry to hear of your diagnosis but you have come to the right place. This is a very supportive small community and we all have experienced your diagnosis. Unfortunately you are certainly not the only one who was initially misdiagnosed with piles and I am relieved that you kept pushing.

You just have to get through all these investigations (which seem to go on forever) but once treatment starts you will feel a lot more in control of what is happening to you. And a quick word of advice - when you take any opioid drugs, and co-codamol is one, have a supply of Laxido (a stool softener) handy. Constipation is not your friend right now.

Please let us know how you get on with the oncologist and when you get the treatment plan, and we are always here should you need to off-load in the meantime.

Big hug

Irene

Beckym16798147d 1 hour ago in reply to Ian L c2e27

Hi and thank you so much for the welcome and your advice! I think this is just precious to have a group of fellow warriors to bond with

Hope everything goes well and I’m here if you ever need a chat too ️

kindest regards

Beckym16798147d 1 hour ago in reply to Irene75359

Hi Irene

many thanks for your reply ️

Small and select eh! I like this lol!

Yes I was prescribed laxido along with the cocodamol and I’ve started taking regularly already .. I’ve decided to make friends with my bowel lol and we are spending considerable time together sitting kind of comfortably in quiet contemplation .. passing the time of day! lol

I look forward to many more conversations with you all!

with many thanks for your kind words xx

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