Hello everyone,
Im new to this group. Just writing this message makes me cry. Still very emotional. Im 3 months post chemo radiation Pelvic and rectal . I had 20 session.
Im still using a sitz bath. I really find it helps with the pain . I too am hopeful of a pain free BM in the future. . Take care and good luck with your healing
Hi Jo - and Merida46, I don't know how to include both names in my reply, sorry.
You are both still in really early days, but please be assured that it will get better. This treatment is really effective, but it's certainly harsh on our bodies and for some of us healing takes quite a long time, and we are affected different ways, as you are probably reading from the replies here.
You will find gradually things ease up. Try to take things very gently and be kind to yourself. Make sure you ask for help if you need it. The staff who have helped you are still there to deal with any issues you have as your body recovers.
I suppose it could take a year until you are back to some sort of normal, but in my experience the pain and discomfort eased up after a few months. I can feel your despair, Merida but please don't think you will feel like this for a year. By the time you have your next check up you should be feeling a whole lot better.
I wish you healing, and health. You will get there. xx
Hi ..
I'm four years post treatment and still having issues with after affects of radiation.
I have to remind myself daily that I'm alive and that I'll deal with the problems as they come.
I have lots of bowl issues, pain, abdominal issues and fatigue.
I haven't found anything that helps with these problems. Joined here in hopes of finding some.
Hi Katy ,
I’m 17 months post treatment and suffering on a daily basis with intestine pain , nausea etc .. I have given up finding out what and why and live with it ..it’s very frustrating and I feel for you …
go steady ,
Chrissie xx
Hi Merida46fbbb ,
Welcome.
As has already been said considering the kind of treatment we have for this diagnosis it’s not surprising that it takes some time to recover is it? It’s short but pretty damn sharp too! But that doesn’t detract from how you’re feeling right now.
Most of us here have been where you are now & we've all been eager to see leaps & bounds in our recovery but the reality is that sometimes it comes in baby steps for a while. It’s so difficult sometimes but try & believe that you will get there in the not too distant future.
I found the prevalent side effects for me were the painful bowel movements & fatigue but gradually both improved, I learned that I had to have a whole lot of patience & to listen to my body & give it what it needed in regards to rest etc. I’m presently 7.5 years post treatment & although I’ve a couple of issues that the GP & physio think are possibly related to the radiotherapy but other than that I’m doing well.
I hope you start to see some improvements soon & remember we’re here to support you however we can.
Nicola
Hi I am 2 1/2 months post treatment and having a mixture of not so good days and then better days. I probably like you thought I would feel better a lot earlier. I have been having reiki which I find helps relax me. I am walking daily and having lots of magnesium baths. I think post treatment is so hard less support generally and lots of anxiety hoping it's all worked.I hope things are starting to improve for you.
Hugs
X
Hi ..
There is actually a name for what we have. Ulcerative Radiation Proctitis.
Symptoms include constipation, diarrhea, having the urge to have a BM much of the time, but no bowel is released. Pain, Nausea, vomiting, fatigue and bones are easily broken. I looked it up on Google and it explains it very well.
There are only a few days out of the month that I feel well. It's very frustrating but now that I know it is a condition, I feel some relief. I thought perhaps my cancer came back.
If you do decide to look it up, let me know what you think. Could this be what you are experiencing?
Best of health to you. Be blessed.
Kathy
Thanks Katy ,
I have a gastro appointment this morning after over a year of pain !!! I know I have the radiation proctitis but checking now for other things related to late effects . I will keep you posted and hopefully some answers ?
take care ,
Chrissie xx
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