I'm starting week 2 and noticed a mouth sore yesterday. Today I now have four and am not feeling that great. No fever, and I can eat (though I have zero hunger), so the care team told me to rinse with salt-and-baking-soda water several times a day. Anyone else have experience with mouth sores? What did you do? And how long did it last?
I had a 5-FU infusion last week instead of capecitabine, and I am wondering if that played a role in my current situation.
Thanks ahead of time for your advice!
Hi Poppydays2
I didn't have mouth sores, so can't help. I think maybe as all my chemo was via a picc line instead of oral I escaped that. I have read others on here have suffered so hopefully they will pick up on your post and be able to help. Keep counting down the days. Sending hugs. Xx
Hello Poppydays
I didn't have mouth sores during treatment but have had at other times and they are completely miserable, I am sorry that you have this side effect so early on in treatment. The only thing I can suggest is Bonjela on the sores, it does sting a bit but then causes numbness for a while.
Hope you don't develop any more and those that you have heal - just sometimes we can have an extreme reaction at the beginning of treatment until the body gets used to the treatment.
Gentle hug
Irene xx
Thanks, Irene. I'll try the Bonjela, and I'm going to talk to my treating team because this kind of stinks (it's limiting what I can eat). Fingers crossed it's temporary!
Thanks so much, Bungle1. Hopefully, this is a blip rather than a feature. I'm going to talk with my care team later today. :)
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