Fertility, menopause and anal cancer

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Hi, 

This is one for the ladies out there…However guys you may find some of this useful x 

Im 39 and have stage 1 borderline stage 2 anal cancer. It hasn’t spread which I’m grateful for. This has been a 2 year journey for me to get answers. I did everything possible to find out what was wrong with me as I’ve had pelvic pain for 2 years and my gut was telling me something is wrong! From February I’ve had allot of pain when I pass a stool and by August I couldn’t even sit down or drive as the pain was off the scale. I went back and forth to the GP, A&E and private consultants, I would scream and cry when they’d examine me and they kept putting it down to a tear that I have. I finally found a private consultant who has literally saved my life and helped me. She suggested Botox under a general anaesthetic and that’s when she found a lump. 2 weeks later I have squamous cell carcinoma. 

I’ve now had two rounds of Botox and this pretty much stops the pain in the bum area. Previously it was like shitting out glass and I’d scream the whole way through. When I think back to that, I have no idea how I still worked and carried on. 

I would highly recommend BOTOX to anyone struggling when pain especially passing a stool. The nhs can provide this and it’s done under a general anaesthetic. 

I have recently frozen my eggs as I’ve not got any children and this illness has already taken so much of my life. I’ve been told I have a high chance of going into the menopause and not be able to carry a child. tbh I find this harder to accept than the actual cancer. I’ve had an injection to put me into a temporary menopause to potentially prolong or stop me going into the menopause early. I’ve heard that you can get narrowing and dryness of the vagina too? 

Has anyone been through this or going through this? As any tips or advice would be very appreciated. 

What creams does everyone use around the bum area whilst having treatment? I start my treatment on Monday 2/12/24! 

Wish me luck! I just want this nightmare over now.

Hayley xxx

  • Hello Hayley, I too was unable to use E45 cream, any cream with honey in it or silver based cream. During treatment I used a gel called StrataXRT which I had to buy privately. It’s pretty expensive but it kept my skin intact throughout treatment but did have some internal inflammation. I was given flaminal and flamigel for this. After all treatment finished I got some Vaseline for sensitive skin and had no burn from this. 
    When you are ready to use the dilators you will probably feel a bit nervous at the beginning after the treatment you have had. I found having a nice warm bath to help warm and relax the muscles and use plenty of lubricant. I did end up buying some silicone ones to begin with as they were softer but one complaint I had with them was the logo that ran down the side of them which could sometimes be felt. I would also rub some vitamin e oil or tamanu oil around the area. 
    I too was well through the menopause but for some reason did start  getting hot flushes again.  See if your hospital has a department for pelvic floor physio who cover all kinds of female issue's down there. I wish you well going forward and I so wish I had known about the Botox in the bum!
    Julie

  • Hello MissBear

    Three months after treatment ended I was in Spain with my husband and caught Covid - my husband rand the hospital in a panic as he was concerned, but they said my last blood test had been back to normal.  In the event, I got off very lightly and only had one day where I stayed in bed.  I haven't had anything, not even a cold since.

    Just make sure you are completely recovered before you consider going back to work.

    Irene xx