I have my plan

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Today has been very busy , my first appointment with an oncologist she was lovely.

So Im T3 N1 M0 , my treatment will be 28 days of chemo radiation.

Treatment to start in 2/3 weeks firstly I need my scan for radiation and tattoos and another appointment for chemo ward and some checks.

I’d explained that I had join this group and already had some great information and tips.

The only shock was my treatment will not be at my local cancer centre as they dont have the anal specialists there. The centre I will be at is in the middle of Liverpool city centre  and Im a nervous driver !!! They will arrange transport which is a big help.

Im relieved to have my plan. 

Emma x

  • Hi Emma, 

    That’s brilliant news Emma and not too long to wait. Blush It’s my first day today, I'm setting off about 10ish, chemo first and then my first radiotherapy session. My daughter is away on a school trip, she sent me a good luck message this morning and a ‘love you’ message, with her being a teenager I thought she’d forgotten! Laughing 

    Wishing you all the very best Emma, let’s give this nasty thing a really good seeing to! Please keep me updated with how you’re getting on. 

    Sending you a big virtual hug. Hugging xx

  • Great news Emma , keep in touch xx

  • All the best Adele … let us know how you get on over the next few weeks 

    Chrissie xx

  • Very relieved for you that your plan is through! Can I ask how long it has taken? I had quite a flurry of appointments, scans and a EUA all within two weeks and now haven’t really heard anything for a fortnight. 
    I know they removed a large amount of the growth during the EUA and they’re running all sorts of tests. 
    just not sure what timeframes are. Psychologically I’m struggling worrying what’s happening down there!

    hopefully the travel isn’t too taxing for you, it might be a relief not to have to drive. I’m in Cornwall and we only have one hospital so hoping mine can be done there!

    take care, K

  • Heres my timeline so far , In summary 12 weeks from investigative colonoscopy after GP felt mass inside bum to start of treatment . I think the longest wait Ive had between knowing more is 2 weeks . I was the same wanting to know the diagnosis and plan its a horrible wait but agree with other comments that you will feel more settled once you have a plan . I’ve started prep now purchased sitz bath and a upside down wash bottle , some floaty dresses and some epsom salts. They said today in my radiation prep it wont harm in starting to moisturise the skin now so its nice and soft for the radiation. Also downloaded some netflix films for the waiting around 

    colonoscopy- 23 april suspected piles & polyps

    mri and ct scan - 29 april

    meeting with local colorectal specialist - 16 may scc diagnosis 

    2 nd biopsy- 27 May

    PET scan - 10 June

    Head MRI - 17 June ( my PET scan showed a glow in my pituitary gland ) 

    1 st appointment with oncologist- 28 June

    Radiotherapy prep - today 


    heres 1 of my 3 tattoos for radiotherapy 

    big hugs x Emma

  • Hi Emz, me too! Starting chemoradiation at CCC Liverpool next week. Transport has been arranged. Good luck to both of us

  • Hi Franco

    They are really nice at CCC , I’m just about to start week 4 of treatment

    My radiotherapy times are always 11 or 11:30 

    Feel free to say Hi if you are around same time 

    Good luck 

    Emma x

  • Hi Emma I have read your posts and I’m on a similar journey. I have my first meeting on 13.9.24 at Clatterbridge Liverpool,I have been diagnosed with anal cancer 3.8 cm tumour and maybe a spread but not definite a lot uncertainties. I hope your treatment is going well and you are getting great care x ️

  • Hi MLS 

    All the staff at Clatterbridge Liverpool are lovely and will really take care of you. 

    I completed my treatment 2 weeks ago and currently recovering, all my side effects are slowly disappearing, I have a check up with oncologist in a few weeks and scan nov time 

    hope ot all goes well for you , any questions ask away 

    Emma x 

  • Thanks for getting back to me Emma it’s good to hear you are doing well, I am  hoping they can do something for me I may not be curable and I’m thinking all sorts of things right now at least when Friday comes I will hopefully know more.

    sending hugs, Margaret