Hi @TraceyJane
Yes I can imagine - I felt exactly the same but I think we have to appreciate that a lot of planning goes on behind the scenes. It is very targeted treatment. Hence the few weeks delay. It'll go more quickly than you think and give you time to get together all the bits to help you get through as smoothly as possible. Have you got a shopping list yet?
Hi ,
Ruth has explained your diagnosis well. Squamous Cell Carcinoma is the most common of anal cancers & strangely I was quite relieved when I was told this was what my diagnosis was as I didn’t want anything any rarer than this already was! Surgery is generally only an option if you’re diagnosed very early like myself (T1N0M0) my surgeon told me that this is usually only possible in roughly 1/600 cases. In the US surgery is much more common than here in the UK & the treatment regime differs slightly. Your affected lymph node will be mapped into your radiotherapy plan & get zapped at the same time as your tumour. The chemoradiotherapy is usually very effective. Ruth (Bottom56) I do hope your scans go well & you receive excellent results, I’ve got everything crossed for you, hope you’re doing well.
Nicola
Sorry to explain. Housie was my first sign up name but for some reason list it! I just used my laptop rather than my phone and clearly it’s found again!!! I am the same person
Just things that might help you get through it all more comfortably. For example some things that helped me are:
Dead Sea salts for bathing
Portable bidet - bottle with spray spout on end
Long nighty - you can put your feet up and air the affected area with dignity
V pillow for comfort
Andrex washlets or similar
Tena pads
Soft sponge for sensitive washing and mild soap
Cushion to sit on- doughnut or pressure cushion
Metal free trousers with elasticated waist - so you can just them down for your radio therapy treatment
You might have some of these already. I’m sure others will have more suggestions.
Hope this is of help. Others might have further suggestions.
Ruth
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